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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Kynmobi"

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Duopa

Duopa

How does this compare with apomorphine

A MyParkinsonsTeam Member said:

My mum has just recently started using Movapo subcutaneous infusion pump which self administers Apomorphine (no relation to morphine - its a dopamine agonist drug) The hope was to balance out mum's… read more

posted 9 months ago

Kynmobi

Kynmobi

Anyone out there taking Kynmobi for off times? My husband is going to start it this Friday would like to hear from anyone that is presently taking this drug, does it help?

A MyParkinsonsTeam Member said:

We did not start the Kynmobi as it made his blood pressure bottom out. He knows when he is having an off time. It is almost like a panic attack he becomes quite and can't really do anything almost… read more

posted 6 months ago

Lost Too Much Weight

Lost Too Much Weight

I have Parkinson's for about 12 years. I started losing weight after a few years and then it stopped for a while. Now i'm losing weight very fast, a few pounds a month. I'm much too thin and look underweight. I don't have any other symptoms to cause the weight loss. I eat normally and have a very appetite. I am a 63 year old woman.l How common is it to lose weight with PD?

A MyParkinsonsTeam Member said:

I take Levadopa.

posted 27 days ago

Has Anyone Been Using KYNMOBY.?

Has Anyone Been Using KYNMOBY.?

A MyParkinsonsTeam Member said:

My doc. Is putting me on that and I am still not sure if I trust that It will work for me . He gave me one dose.
I felt unstable while walking. Does the body learn to coop with that?

posted 5 months ago

Tremors

Tremors

My husband has tremor predominant parkinson.

Seems like he has tried all medication. Those help with rigidity but not the tremors.

Praying for a miracle.

Any suggestions??

A MyParkinsonsTeam Member said:

Is he ready to consider DBS (Deep Brain Stimulation)? That can make a big difference in stopping tremors.

posted 10 months ago

Is This Stem Cell Research Considered Promising?

Is This Stem Cell Research Considered Promising?

Surgeons implanted 2.5million stemcells that had been grown into dopamine transporting brain cells, into a human two years ago. He's still doing well, much improved with no side effects. It's a while off before it's available. But seems exciting to me as very potentially a cure or big improver.

I don't see much talk about this on websites. Why is that? Is there something not good about it?

Summary: https://www.parkinsons.org.uk/news/reprogrammin...

More detailed
https://www.technologynetworkread more

A MyParkinsonsTeam Member said:

I've been on C/L 25/100 for about 25 yrs. I haven't had that many problems with it. I do get dyskinesia, when I take to much. I'm on two other medicines now since June of this year. Neupro patches is… read more

posted 10 months ago

Nausea

Nausea

Is nausea a common symptom in PD? My husband has an MRI scheduled for next week (7th) and has not started on any medications yet. He has daily bouts of nausea sometimes accompanied by vomiting. The "bouts" are getting to be more often just over the past few days. He could hardly stand yesterday because of it so just laid on the couch.

A MyParkinsonsTeam Member said:

MRI came back good. No masse/tumor which was a huge relief!!. His nausea is getting even worse than it was before (along with his other symptoms). He was given a script for Zofran (only 10 tabs!!)… read more

posted 10 months ago

Carb/levo

Carb/levo

If i miss a time for my mediation should i take it when i remember or take it at the next scheduled time ?

A MyParkinsonsTeam Member said:

I can go all day without tremors, but come 7pm I'm having tremors, it takes 2 pills 30 mins apart because we eat supper around 6 to 6:30 I know it will be tough on me that's about the only time I hurt… read more

edited, originally posted 11 months ago

Rytary For Smoothing Out Dyskinesia?

Rytary For Smoothing Out Dyskinesia?

Does anyone take Rytary to smooth out instances of dyskinesia? Did you have more side effects? My doctor said I would feel weird on it.

A MyParkinsonsTeam Member said:

I have a rx for rytary and the cost is $683.00 a month, is there any program anyone is on to help with the cost. Between rytary and inbrijia the cost would be close to $1000. 00 a month. i recently… read more

posted over 1 year ago