Kynmobi and Parkinson's disease | MyParkinsonsTeam

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Top 10 Search Results for "Kynmobi"

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Duopa
A MyParkinsonsTeam Member asked a question 💭

How does this compare with apomorphine

A MyParkinsonsTeam Member

Hi Cardlady".
I haven’t seen any posts from. You for a while. I hope that’s a good sign and that you are too busy.

Apokyn Injectable -about To Start On It. Anyone Use This Drug?
A MyParkinsonsTeam Member asked a question 💭

My sister is about to start Apokyn which is a rescue drug that is injected( like diabetes’ injectable with small thin needle that doesn’t hurt). It supposed to kick in within 10-20 minutes and last about an hour while other carbidopa-levodopa kicks in ( takes about an hour for that). Anyone have experience with this drug?

A MyParkinsonsTeam Member

I have never heard of these drugs. I will stick to THC it alot more natural.

Has Anyone Here With PD Been Prescribed Kynmobi?
A MyParkinsonsTeam Member asked a question 💭

I’ve been prescribed Kynmobi and been told to reduce the amount of Rytary I take.

A MyParkinsonsTeam Member

They sent me a months worth for free

Does Anyone Have Any Extra Kynmobi They Want To Sell. Or Giveaway? I’m Also Looking For Apokyn
A MyParkinsonsTeam Member asked a question 💭
Is This Stem Cell Research Considered Promising?
A MyParkinsonsTeam Member asked a question 💭

Surgeons implanted 2.5million stemcells that had been grown into dopamine transporting brain cells, into a human two years ago. He's still doing well, much improved with no side effects. It's a while off before it's available. But seems exciting to me as very potentially a cure or big improver.

I don't see much talk about this on websites. Why is that? Is there something not good about it?

Summary: https://www.parkinsons.org.uk/news/reprogrammin...

More detailed
https://www.technologynetworkread more

A MyParkinsonsTeam Member

I've been on C/L 25/100 for about 25 yrs. I haven't had that many problems with it. I do get dyskinesia, when I take to much. I'm on two other medicines now since June of this year. Neupro patches is… read more

Kynmobi
A MyParkinsonsTeam Member asked a question 💭

Anyone out there taking Kynmobi for off times? My husband is going to start it this Friday would like to hear from anyone that is presently taking this drug, does it help?

A MyParkinsonsTeam Member

We did not start the Kynmobi as it made his blood pressure bottom out. He knows when he is having an off time. It is almost like a panic attack he becomes quite and can't really do anything almost… read more

Is Anyone Taking Kynmobi?
A MyParkinsonsTeam Member asked a question 💭

If so, can you speak to its affect/results?

A MyParkinsonsTeam Member

My neurologist won't give it to me as he said it causes nausea. I did speak with another person with PD who uses Kynmobi and she had no problem with it.

Has Any PD Patients Out There Tried The Drug Kynmobi For Managing The Off Times?
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

I want to know too. Also I don’t understand the difference between Dyskinesia and PT tremors and when they talk about off days which one are they talking about. I have good days and bad days it’s all… read more

Has Anyone Been Using KYNMOBY.?
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

My doc. Is putting me on that and I am still not sure if I trust that It will work for me . He gave me one dose.
I felt unstable while walking. Does the body learn to coop with that?

Lost Too Much Weight
A MyParkinsonsTeam Member asked a question 💭

I have Parkinson's for about 12 years. I started losing weight after a few years and then it stopped for a while. Now i'm losing weight very fast, a few pounds a month. I'm much too thin and look underweight. I don't have any other symptoms to cause the weight loss. I eat normally and have a very appetite. I am a 63 year old woman.l How common is it to lose weight with PD?

A MyParkinsonsTeam Member

I take Levadopa.