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My mum has just recently started using Movapo subcutaneous infusion pump which self administers Apomorphine (no relation to morphine - its a dopamine agonist drug) The hope was to balance out mum's… read more
We did not start the Kynmobi as it made his blood pressure bottom out. He knows when he is having an off time. It is almost like a panic attack he becomes quite and can't really do anything almost… read more
I want to know too. Also I don’t understand the difference between Dyskinesia and PT tremors and when they talk about off days which one are they talking about. I have good days and bad days it’s all… read more
I have Parkinson's for about 12 years. I started losing weight after a few years and then it stopped for a while. Now i'm losing weight very fast, a few pounds a month. I'm much too thin and look underweight. I don't have any other symptoms to cause the weight loss. I eat normally and have a very appetite. I am a 63 year old woman.l How common is it to lose weight with PD?
By the end of the day I am shaking again, head bobbing, falling when turning around, and loosing my train of thought. I know that I have had tremors for over 25 years, off and on, and been falling for the past 5 years, so my diagnosis last month came as no surprise.
Surgeons implanted 2.5million stemcells that had been grown into dopamine transporting brain cells, into a human two years ago. He's still doing well, much improved with no side effects. It's a while off before it's available. But seems exciting to me as very potentially a cure or big improver.
I don't see much talk about this on websites. Why is that? Is there something not good about it?
I've been on C/L 25/100 for about 25 yrs. I haven't had that many problems with it. I do get dyskinesia, when I take to much. I'm on two other medicines now since June of this year. Neupro patches is… read more
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