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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Kynmobi"

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Duopa

Duopa

How does this compare with apomorphine

A MyParkinsonsTeam Member

My mum has just recently started using Movapo subcutaneous infusion pump which self administers Apomorphine (no relation to morphine - its a dopamine agonist drug) The hope was to balance out mum's… read more

Kynmobi

Kynmobi

Anyone out there taking Kynmobi for off times? My husband is going to start it this Friday would like to hear from anyone that is presently taking this drug, does it help?

A MyParkinsonsTeam Member

We did not start the Kynmobi as it made his blood pressure bottom out. He knows when he is having an off time. It is almost like a panic attack he becomes quite and can't really do anything almost… read more

Has Any PD Patients Out There Tried The Drug Kynmobi For Managing The Off Times?

Has Any PD Patients Out There Tried The Drug Kynmobi For Managing The Off Times?

A MyParkinsonsTeam Member

I want to know too. Also I don’t understand the difference between Dyskinesia and PT tremors and when they talk about off days which one are they talking about. I have good days and bad days it’s all… read more

Is Anyone Taking Kynmobi?

Is Anyone Taking Kynmobi?

If so, can you speak to its affect/results?

A MyParkinsonsTeam Member

My neurologist won't give it to me as he said it causes nausea. I did speak with another person with PD who uses Kynmobi and she had no problem with it.

Lost Too Much Weight

Lost Too Much Weight

I have Parkinson's for about 12 years. I started losing weight after a few years and then it stopped for a while. Now i'm losing weight very fast, a few pounds a month. I'm much too thin and look underweight. I don't have any other symptoms to cause the weight loss. I eat normally and have a very appetite. I am a 63 year old woman.l How common is it to lose weight with PD?

A MyParkinsonsTeam Member

I take Levadopa.

My Doctor Has Me On Primidone. It Has Helped With The Tremors, But Nothing Else. Shouldn't It Do More?

My Doctor Has Me On Primidone. It Has Helped With The Tremors, But Nothing Else. Shouldn't It Do More?

By the end of the day I am shaking again, head bobbing, falling when turning around, and loosing my train of thought. I know that I have had tremors for over 25 years, off and on, and been falling for the past 5 years, so my diagnosis last month came as no surprise.

A MyParkinsonsTeam Member

Dale what are all symptoms that carbo/levo impact? My understanding was that it did not improve balance but I keep seeing posts that say otherwise

Has Anyone Been Using KYNMOBY.?

Has Anyone Been Using KYNMOBY.?

A MyParkinsonsTeam Member

My doc. Is putting me on that and I am still not sure if I trust that It will work for me . He gave me one dose.
I felt unstable while walking. Does the body learn to coop with that?

Tremors

Tremors

My husband has tremor predominant parkinson.

Seems like he has tried all medication. Those help with rigidity but not the tremors.

Praying for a miracle.

Any suggestions??

A MyParkinsonsTeam Member

Is he ready to consider DBS (Deep Brain Stimulation)? That can make a big difference in stopping tremors.

Is This Stem Cell Research Considered Promising?

Is This Stem Cell Research Considered Promising?

Surgeons implanted 2.5million stemcells that had been grown into dopamine transporting brain cells, into a human two years ago. He's still doing well, much improved with no side effects. It's a while off before it's available. But seems exciting to me as very potentially a cure or big improver.

I don't see much talk about this on websites. Why is that? Is there something not good about it?

Summary: https://www.parkinsons.org.uk/news/reprogrammin...

More detailed
https://www.technologynetworkread more

A MyParkinsonsTeam Member

I've been on C/L 25/100 for about 25 yrs. I haven't had that many problems with it. I do get dyskinesia, when I take to much. I'm on two other medicines now since June of this year. Neupro patches is… read more