Parkinson's disease

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1 medium

Northera

My neurologist has prescribed Northera For my hypotension. Have not taken it yet but I am apprehensive about the reviews Has anyone taken it and if so what were the side effects and was it helpful

posted 5 months ago
A MyParkinsonsTeam Member said:

yessss i m very anxious to try it.
i just want to be able to stand to be able to do physical therapy. cook my family,insurance playing god now, the… read more

posted 3 months ago
8 medium

orthostatic hypotension

I was wondering if anyone shares my situation.I like many of us have orthostatic hypotension- My BP can go from 140/90 to 60/40 in seconds and obviously i get dizzy sometimes blacking out and losing consciousness. Then at times my BP is VERY high as in 220/110. When it gets high I have been sent to the ER and they insist on meds to lower it which then impacts the orthostatic hypotension. Hard to find a doc who understands this. At one point I was taking Northera which is specifically for… read more

posted almost 3 years ago
A MyParkinsonsTeam Member said:

The drug I take for low blood pressure is Brand Names: Avapro,

Generic Name: irbesartan

Side Effects:

Call your doctor at once if you have a serious… read more

posted 6 months ago
1 medium

Re Gen Parkinson's Therapy Centre Italy

I have been reading about the Re Gen Parkinson's Therapy Centre and wondered anyone knew about the treatments or had actually been.

All Therapy is included with
First night orientation
Living with Parkinson therapy
Knowing Parkinson’s Consultancy
Medicines and Research
Cognitive therapy
Practical therapy
Assistence and support
Individual daily Physical Neurotherapy.
Movement and relaxation therapy
Nutrition advice
Speech therapy*
Neurologist*
Dietary consult*
Foot… read more

posted over 1 year ago
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member - be sure to Participate in your therapy at the Re Gen Parkinson's Therapy Centre. Record or take notes or have someone take… read more

posted 7 months ago
7 medium

Can anyone recommend a Dr. that specializes in Parkinsons in the Northern NJ area?

posted 10 months ago
A MyParkinsonsTeam Member said:

John Hopkins neurology Center. They have a whole neurology team and are willing to try and try and try to make life better for Parkinson's patients.… read more

posted 9 months ago
8 medium

Inpatient Rehab

Hi All.. I have been having a terrible time walking lately - freezing, falling- you all know the scene. I have at home P/t which is very mild. Has anyone gone into inpatient rehab and is there programs; out there for Parkinsons? I live in northern NJ- any suggestions or facilities you heard anything about? Looking to check out some facilities. Guess I am wondering if having intensive therapy would change my situation or is it what it is. curious to hear stories or suggestions. outpatient is not… read more

posted over 2 years ago
A MyParkinsonsTeam Member said:

My husband has had both in house and outside. Outside is better because they have more machines available. Don't wait do it now and keep doing it. The… read more

posted over 1 year ago
8 medium

Physical Therapy for freezing and gait

I was just wondering if anyone has physical therapy or any type of therapy to teach them to manage freezing episodes. I live in Northern NJ and my doc said she does not know of anyone who deals specifically with Parkinsons. I need someone to teach me how to manage episodes. I currently have to call someone for help and this keeps my home bound. Are there these types of people who understand Parkinsons? My balance and freezing keep me from being independent. Any suggestions.… read more

posted about 3 years ago
A MyParkinsonsTeam Member said:

Have you tried listening to your favourite music. This works with some not all people. Who knows you may start dancing

posted over 1 year ago
5 medium

Does anyone know of Rock Steady boxing for PD in northern NJ?

posted about 2 years ago
A MyParkinsonsTeam Member said:

Our support group contacted a regular boxing trainer. WE are going through regular training the same as his boxers. no sparing. 3 females and 4 men. We… read more

posted about 2 years ago
5 medium

Are there any chapters of national Parkinson's foundation or Michael J Fox in northern nj?

posted about 2 years ago
A MyParkinsonsTeam Member said:

Both orgs have websites and you can search for local support groups/chapters there. The Rock Steady Boxing website also has a search feature for gyms in… read more

posted about 2 years ago
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