Parkinson's disease

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2 medium

Northera

Northera

Greetings.
I have been taking Northera since the beginning of November 2018. My dosage is six capsules three times daily (18 in total).
Among other side effects, “reduced weight gain” is listed.
What does this mean? Is this weight0 loss?
I have lost a good deal of weight (12 lbs) since I began taking this drug. I seem to lose a pound or two monthly.
Truthfully, I don’t feel much better from the drug. Also, I always had low blood pressure, and Northera was prescribed to raise my levels so that I could… read more

2 mini
A MyParkinsonsTeam Member said:

Hi Sarah.
For starters I’m not a cat named Chile. My husband did that. My name is Elly. Thanks for your response.
Yes, CVS Specialty at refill time… read more

posted 2 months ago
8 medium

Physical Therapy for freezing and gait

Physical Therapy for freezing and gait

I was just wondering if anyone has physical therapy or any type of therapy to teach them to manage freezing episodes. I live in Northern NJ and my doc said she does not know of anyone who deals specifically with Parkinsons. I need someone to teach me how to manage episodes. I currently have to call someone for help and this keeps my home bound. Are there these types of people who understand Parkinsons? My balance and freezing keep me from being independent. Any suggestions.… read more

0 mini
A MyParkinsonsTeam Member said:

Have you tried listening to your favourite music. This works with some not all people. Who knows you may start dancing

posted over 2 years ago
1 medium

Northera

Northera

My neurologist has prescribed Northera For my hypotension. Have not taken it yet but I am apprehensive about the reviews Has anyone taken it and if so what were the side effects and was it helpful

9 mini
A MyParkinsonsTeam Member said:

My husband has been taking it since November for his hypotension & it has been very effective. It helped him almost immediately. Before Northera he… read more

posted 4 months ago
8 medium

orthostatic hypotension

orthostatic hypotension

I was wondering if anyone shares my situation.I like many of us have orthostatic hypotension- My BP can go from 140/90 to 60/40 in seconds and obviously i get dizzy sometimes blacking out and losing consciousness. Then at times my BP is VERY high as in 220/110. When it gets high I have been sent to the ER and they insist on meds to lower it which then impacts the orthostatic hypotension. Hard to find a doc who understands this. At one point I was taking Northera which is specifically for… read more

9 mini
A MyParkinsonsTeam Member said:

The drug I take for low blood pressure is Brand Names: Avapro,

Generic Name: irbesartan

Side Effects:

Call your doctor at once if you have a serious… read more

posted about 1 year ago
1 medium

Re Gen Parkinson's Therapy Centre Italy

Re Gen Parkinson's Therapy Centre Italy

I have been reading about the Re Gen Parkinson's Therapy Centre and wondered anyone knew about the treatments or had actually been.

All Therapy is included with
First night orientation
Living with Parkinson therapy
Knowing Parkinson’s Consultancy
Medicines and Research
Cognitive therapy
Practical therapy
Assistence and support
Individual daily Physical Neurotherapy.
Movement and relaxation therapy
Nutrition advice
Speech therapy*
Neurologist*
Dietary consult*
Foot… read more

4 mini
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member - be sure to Participate in your therapy at the Re Gen Parkinson's Therapy Centre. Record or take notes or have someone take… read more

posted about 1 year ago
7 medium

Can anyone recommend a Dr. that specializes in Parkinsons in the Northern NJ area?

Can anyone recommend a Dr. that specializes in Parkinsons in the Northern NJ area?

1 mini
A MyParkinsonsTeam Member said:

John Hopkins neurology Center. They have a whole neurology team and are willing to try and try and try to make life better for Parkinson's patients.… read more

posted over 1 year ago
8 medium

Inpatient Rehab

Inpatient Rehab

Hi All.. I have been having a terrible time walking lately - freezing, falling- you all know the scene. I have at home P/t which is very mild. Has anyone gone into inpatient rehab and is there programs; out there for Parkinsons? I live in northern NJ- any suggestions or facilities you heard anything about? Looking to check out some facilities. Guess I am wondering if having intensive therapy would change my situation or is it what it is. curious to hear stories or suggestions. outpatient is not… read more

5 mini
A MyParkinsonsTeam Member said:

My husband has had both in house and outside. Outside is better because they have more machines available. Don't wait do it now and keep doing it. The… read more

posted almost 2 years ago
5 medium

Does anyone know of Rock Steady boxing for PD in northern NJ?

Does anyone know of Rock Steady boxing for PD in northern NJ?

7 mini
A MyParkinsonsTeam Member said:

Our support group contacted a regular boxing trainer. WE are going through regular training the same as his boxers. no sparing. 3 females and 4 men. We… read more

posted almost 3 years ago
5 medium

Are there any chapters of national Parkinson's foundation or Michael J Fox in northern nj?

Are there any chapters of national Parkinson's foundation or Michael J Fox in northern nj?

2 mini
A MyParkinsonsTeam Member said:

Both orgs have websites and you can search for local support groups/chapters there. The Rock Steady Boxing website also has a search feature for gyms in… read more

posted almost 3 years ago
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