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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Ongentys" in Q&A. To see all results and access other features, sign up for free.

Has Anyone Combined Ogentys With Rytary To Help With Off Periods And How Is It Working

A MyParkinsonsTeam Member asked a question 💭
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A MyParkinsonsTeam Member

Ongentys (Opicapone) is used as an adjunctive treatment to levodopa and carbidopa, which includes Rytary, for people with Parkinson's experiencing "off" episodes. Ongentys works by preventing the… read more

Has Anyone Used Ongentys

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Does Anyone Have Experience At Ongentys?

A MyParkinsonsTeam Member asked a question 💭

Please let me know how it works for you.

A MyParkinsonsTeam Member

It is one of my new meds I take one capsule one hour bef ore my last dose of co-careldopa. I must say neither seem to be working very well at the moment.

Is It Part Of Parkinson’s To Be Exhausted All The Time. I Am Always So Tired Even If I Slept Good.

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A MyParkinsonsTeam Member

Yes, fatigue is a common symptom of Parkinson's disease and can be very debilitating. It can manifest as both physical and mental exhaustion, making it difficult to perform daily activities. Even if… read more

Anyone Else Suffer From Chronic Insomnia ?

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A MyParkinsonsTeam Member

Not currently, but some pills trigger it. Ongentys was the worst.

Anyone Taking Rytary?

A MyParkinsonsTeam Member asked a question 💭

My neurologist recently changed my meds to Rytary. It seems to be working better then the generic C/L.
It's incredibly expensive ($1300/mo). Of course now being on SSDI I couldn't afford it.
At first my health insurance declined to cover it. Then suddenly they flipped and informed they would cover it. So now it's only $25/mo.
Has anyone else had that sort of experience?
Or has there been undesirable side effects with this med?

A MyParkinsonsTeam Member

I changed neurologists last year and he switched me to Rytary and ongentys". I was so good for several months until one night , my feet froze and I fell., causing multiple fractures to my pelvis… read more

Neupro

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A MyParkinsonsTeam Member

Hi, did u have increased dyskinesias, being on Ongentys? (it's a side affect) and if so, how are you handling them? My doctor said, if I can, lower my daily Rytary by 95 mg per dose. I tried that… read more

Terrible Pain

A MyParkinsonsTeam Member asked a question 💭

I’m wondering if anyone can shed some light on a problem. My ex-husband (don’t worry….I’m not looking to finish him off-----we’re the best of friends) is in incredible, I mean INCREDIBLE pain. His tremors are under control thanks to medication and his balance is OK but the pain…. From what he describes, it sounds like muscle contractions that don’t go away. It used to be in his lower extremities but he just told me that now it’s travelled to his shoulders. He walks hunched over and can… read more

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A MyParkinsonsTeam Member

Hi,
I have pain due to muscle contractions in my calf, neck and shoulder. Full body massage helps, stretching and going to a chiropractor will help. What medication is your husband on? I take Sinemet.

Anyone Have Experience Taking OnGenys?

A MyParkinsonsTeam Member asked a question 💭

I would like to know side effects was it effective? If you quit did you have issues? I am not doing well not sure what it is neuro is not helpful

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A MyParkinsonsTeam Member

I don’t know I submitted an application and I have to check this afternoon to find out. I’ll let you know.

Has Anyone Taken Inbrija?

A MyParkinsonsTeam Member asked a question 💭

Has anyone taken Inbrija? It took me 2 months to get it but I got it Tuesday pm & took it for the first time yesterday. It started working in about 10 minutes & full effect was about 35 min. I usually have totally incapacitating off times. Dizzy, lightheaded, nausea, shortness of breath, overall weakness, stiffness, hand & leg tremors, severe & painful toe curling. It usually lasts for about an hour-1.5 hours & sometimes my Sinemet doesnt work at all. I was totally taken back, praising the Lord… read more

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A MyParkinsonsTeam Member

Yes my husband was taking this but it gave him a nasty cough. He just started Ongentys about 2 months ago and it is kicking in now. He is feeling better. He is 59 and has Parkinson’s for 11 years. We… read more