Ongentys and Parkinson's disease | MyParkinsonsTeam

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Top 10 Search Results for "Ongentys"

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Anyone Else Suffer From Chronic Insomnia ?
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

Not currently, but some pills trigger it. Ongentys was the worst.

Anyone Taking Rytary?
A MyParkinsonsTeam Member asked a question 💭

My neurologist recently changed my meds to Rytary. It seems to be working better then the generic C/L.
It's incredibly expensive ($1300/mo). Of course now being on SSDI I couldn't afford it.
At first my health insurance declined to cover it. Then suddenly they flipped and informed they would cover it. So now it's only $25/mo.
Has anyone else had that sort of experience?
Or has there been undesirable side effects with this med?

A MyParkinsonsTeam Member

I changed neurologists last year and he switched me to Rytary and ongentys". I was so good for several months until one night , my feet froze and I fell., causing multiple fractures to my pelvis… read more

Is It Part Of Parkinson’s To Be Exhausted All The Time. I Am Always So Tired Even If I Slept Good.
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

Here’s the information from their website that purportedly will save you as much as 90%

https://www.ongentys.com/support/?gclid=EAIaIQo...

Neupro
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

Hi, did u have increased dyskinesias, being on Ongentys? (it's a side affect) and if so, how are you handling them? My doctor said, if I can, lower my daily Rytary by 95 mg per dose. I tried that… read more

Terrible Pain
A MyParkinsonsTeam Member asked a question 💭

I’m wondering if anyone can shed some light on a problem. My ex-husband (don’t worry….I’m not looking to finish him off-----we’re the best of friends) is in incredible, I mean INCREDIBLE pain. His tremors are under control thanks to medication and his balance is OK but the pain…. From what he describes, it sounds like muscle contractions that don’t go away. It used to be in his lower extremities but he just told me that now it’s travelled to his shoulders. He walks hunched over and can… read more

A MyParkinsonsTeam Member

Hi,
I have pain due to muscle contractions in my calf, neck and shoulder. Full body massage helps, stretching and going to a chiropractor will help. What medication is your husband on? I take Sinemet.

Has Anyone Combined Ogentys With Rytary To Help With Off Periods And How Is It Working
A MyParkinsonsTeam Member asked a question 💭
A MyParkinsonsTeam Member

Check out generics

Anyone Else Find "agonists" Make Things Worse?
A MyParkinsonsTeam Member asked a question 💭

Ropinirole - @12mg daily gave me dystonia in right foot.
Opicapone (ongentsys) - @50mg daily gave me EXACTLY the same dystonia (plus crippling insomnia and a urine infection).

Neither seemed to have any effect on the performance or longevity of the l-dopa.

The only thing other than L-dopa that's worked for me is Rasagiline (Azilect). Is it just me?

A MyParkinsonsTeam Member

Sorry James, normally I get stuff quickly, but I'm left scratching my head over your answer...can you be clearer?

Has Anyone Taken Inbrija?
A MyParkinsonsTeam Member asked a question 💭

Has anyone taken Inbrija? It took me 2 months to get it but I got it Tuesday pm & took it for the first time yesterday. It started working in about 10 minutes & full effect was about 35 min. I usually have totally incapacitating off times. Dizzy, lightheaded, nausea, shortness of breath, overall weakness, stiffness, hand & leg tremors, severe & painful toe curling. It usually lasts for about an hour-1.5 hours & sometimes my Sinemet doesnt work at all. I was totally taken back, praising the Lord… read more

A MyParkinsonsTeam Member

Yes my husband was taking this but it gave him a nasty cough. He just started Ongentys about 2 months ago and it is kicking in now. He is feeling better. He is 59 and has Parkinson’s for 11 years. We… read more

Mucuna L Dopa
A MyParkinsonsTeam Member asked a question 💭

I am interested to know if any one has tried this natural product made from an ancient bean. It is a natural Dopamine substitute. And has been used to treat parkinsons and other neurological problems for many years.

A MyParkinsonsTeam Member

The long term effects of being on Sinemet or any other similar medication is that the receptors for dopamine gradually become distorted.and can no longer pick-up.the.artificial dopamine as the… read more

Anyone Have Experience Taking OnGenys?
A MyParkinsonsTeam Member asked a question 💭

I would like to know side effects was it effective? If you quit did you have issues? I am not doing well not sure what it is neuro is not helpful

A MyParkinsonsTeam Member

I don’t know I submitted an application and I have to check this afternoon to find out. I’ll let you know.