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Parkinson's disease

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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Has Anyone Heard Of The New Strip To Put Under The Tongue To Control On-off Symptoms?

Has Anyone Heard Of The New Strip To Put Under The Tongue To Control On-off Symptoms?

Supposedly coming out in 2017 is something new for the "on-off" symptoms we experience with PD. Has anyone heard of it? Research is being done by Dr. Robert Hauser of the University of South Florida. The new treatment could provide relief to people who wake up experiencing slowness and stiffness, Anyone interested there is a clinical trial in Tampa at the USF Health Byrd Parkinsons Disease and Movement Disorders Center. Thought… read more

A MyParkinsonsTeam Member said:

no I don't sorry. Bean

posted over 3 years ago

My Husband Is Not Tolerating Generic Form Of Cardopa Levidopa

My Husband Is Not Tolerating Generic Form Of Cardopa Levidopa

He has really bad spells of dizziness, nausea for about 30 minutes after about 30 minutes after taking the meds. It is not each time but it is unpredictable. We have also discovered that it elevates his BP after he takes it. Need help of how others may be coping with this same problem. He likes the benefits of this drug. Can really tell it helps but is not tolerating side effects well.
Thank you!

A MyParkinsonsTeam Member said:

On here we know scary. I love this site!

posted 5 days ago

Symptoms Or Differences Between Familial Tremor A Parkinsons

Symptoms Or Differences Between Familial Tremor A Parkinsons

I'd like as many people to give me a summary of meds they have been given and is it an ease of the symptom or a complete
Help. Beside certain side effects

A MyParkinsonsTeam Member said:

OK Dennis, I'll summarize my meds, BUT, you must remember that each of us is affected differently by PD, What helps one person may do absolutely nothing… read more

posted almost 4 years ago

Has Anyone Had Surgery While On Sinemet? Did You Have To Stop Taking It Before The Surgery? And How Did You Get Along?

Has Anyone Had Surgery While On Sinemet? Did You Have To Stop Taking It Before The Surgery? And How Did You Get Along?

I'm taking 1 sinemet 25/100 mg every 2 hours when awake and amantadine 1 3x day.
Having oral surgery Monday with IV sedation. Wondering if any one has gone thur this and did you have to stop meds or able to take them and how you did

A MyParkinsonsTeam Member said:

When I had abdominal surgery they gave me Parcopa. It is a pill that dissolves in your mouth and is a substitute for sinemet. Just ask your neurologist… read more

posted almost 4 years ago

Deep Brain Stimulation

Deep Brain Stimulation

Has anyone had it done and it didn’t work

A MyParkinsonsTeam Member said:

In the making, trying everything else first, on 4 Parcopa 4 times a day

posted over 1 year ago

Is It Best To Put Off Going On Levadopa/Carbadopa For As Long As Possible?

Is It Best To Put Off Going On Levadopa/Carbadopa For As Long As Possible?

I was diagnosed in May 2014 I have been on Rasagaline and pramipexole It has helped some. I still experience tremors and dystonia on my left side.

A MyParkinsonsTeam Member said:

Me too

posted over 1 year ago

Do You Have Experience With Rytary? What Can You Tell Me?

Do You Have Experience With Rytary? What Can You Tell Me?

A MyParkinsonsTeam Member said:

My doctor put me on Retary as soon as it became available. It made a tremendous difference in my walking. Unfortunately my wearing off periods became a… read more

posted over 3 years ago