This may sound a bit odd and don't ask how I came to this conclusion ;-) but I have noticed that when I'm struggling with rhythmic movements such as brushing my hair, brushing my teeth, or stirring food, if I wind my arm up vigorously as if I'm about to pitch a baseball, or run in place raising my knees really high as though I'm jumping double Dutch my symptoms temporarily disappear allowing me to move normally for around 30… read more
This has been going on for a year. I have had cycles of insomnia for years. It started to to increase to 3-4 days per week (2-4 hrs per day). Now it is every day. I am taking bout 5 medications to help me sleep and each time a new one is introduced they might work a night or two but then I am right back to 2-4 hrs per night. I am still working. When I bring up retireing my neurologist says she… read more
I was wondering if anyone had a worsening of symptoms after DBS- months after have the operation and several programming sessions I am totally incapacitated. Prior to DBS I was independent and had symptoms that were well controlled by Levadopa.
Had the DBS and had a horrible reaction to anesthesia, subsequently has a series of urinary tract infections that have been difficult to clear. Picked up several bacteria in the hospital from the catheter… read more
Any ideas on dealing with poor blood circulation that goes along with
our lovely PD?
Do our collective experiences agree with the science, which is basically now saying that Parkinson's is an inflammatory disease. That is people with PD are very sensitive to things which can cause free radicals, allergies, overheating, toxins in the brain and body. These inflammatory factors lead to further neurological damage in the brain, leading to neurodegeneration leading to even… read more
Anyone else out there experience this with their loved one with PD? We are going back to the doctor next week but in the meantime Roy's time of agitation and anxiety has increased. They call this sundowners but Roy's starts around lunchtime and can go on for several hours. It also may occur again in the evening. He is on Seroquel which I was giving at bedtime but I now try it in mid afternoon. He also takes a Xanax occasionally. I have tried turning on the… read more
My father was diagnosed with Parkinson's 2 years ago and I am trying to research as much as I can on ways of slowing the progression of the condition down and giving him the best quality of life as possible. I've read some people have been able to overcome the condition and hope the same for my father.
Through my research I've discovered that spine and neck alignment may play a vital part in blockages to the brain. Unfortunately we don't have… read more
I woke up this morning with a new question about this whole idea of "apathy " if it takes twice as much mental and physical energy to do the same thing you did easily at what time, do you call that apathy? Another term gets thrown around a lot in Parkinson's circles and I don't doubt the physiological basis. But if a person without Parkinson's head tremors, had cramps and freezing episodes, they might have similar difficulties executing… read more
This is how I define me
August 8, 2017
There are a number of things that define me... I will start with the following:
• I never believe a prediction that doesn’t empower me
• I have chosen a life of strength
• Pity is the worst drug, if I pity myself I am frozen
• I am not my condition. My condition does not define me
• I have to adapt. So what is MORE important??? That I am functioning as a human being in my… read more
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