Parkinson's disease

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8 medium

Have any of you found that certain movements will temporarily relieve your symptoms?

Have any of you found that certain movements will temporarily relieve your symptoms?

This may sound a bit odd and don't ask how I came to this conclusion ;-) but I have noticed that when I'm struggling with rhythmic movements such as brushing my hair, brushing my teeth, or stirring food, if I wind my arm up vigorously as if I'm about to pitch a baseball, or run in place raising my knees really high as though I'm jumping double Dutch my symptoms temporarily disappear allowing me to move normally for around 30… read more

edited, originally posted over 2 years ago
2 mini
A MyParkinsonsTeam Member said:

I think adrenaline overrides my symptoms.

posted over 2 years ago
1 medium

I am only sleeping about 2-4 hours per night for about a year. Should I seriously considering retireing? I am exhausted!!!!!

I am only sleeping about 2-4 hours per night for about a year. Should I seriously considering retireing? I am exhausted!!!!!

This has been going on for a year. I have had cycles of insomnia for years. It started to to increase to 3-4 days per week (2-4 hrs per day). Now it is every day. I am taking bout 5 medications to help me sleep and each time a new one is introduced they might work a night or two but then I am right back to 2-4 hrs per night. I am still working. When I bring up retireing my neurologist says she… read more

edited, originally posted almost 3 years ago
1 mini
A MyParkinsonsTeam Member said:

Have any of you gone to your local health food store and asked for natural sleep aids? I take Age Loss Sleep Aid and find it very helpful.

posted over 2 years ago
8 medium

Did anyone have symptoms that were worse after DBS. Feeling scared.

Did anyone have symptoms that were worse after DBS. Feeling scared.

I was wondering if anyone had a worsening of symptoms after DBS- months after have the operation and several programming sessions I am totally incapacitated. Prior to DBS I was independent and had symptoms that were well controlled by Levadopa.
Had the DBS and had a horrible reaction to anesthesia, subsequently has a series of urinary tract infections that have been difficult to clear. Picked up several bacteria in the hospital from the catheter… read more

posted over 3 years ago
5 mini
A MyParkinsonsTeam Member said:

It will be 2 years in Jan since I had Dbs surgery. After my first programming I felt great . Since then it hasn't gone quite so well. I have trouble… read more

posted over 2 years ago
3 medium

Has anyone started Nuplazid?

Has anyone started Nuplazid?

Husband was on seroquel. That was stopped and he started on Nuplazid a couple weeks ago. Seems to be having a rough adjustment period.

posted over 2 years ago
2 mini
A MyParkinsonsTeam Member said:

oh i take only seroquel, nortryptiline, and klonipin at night. also 10 mg of melatonin.

posted over 2 years ago
3 medium

Poor circulation?

Poor circulation?

Any ideas on dealing with poor blood circulation that goes along with
our lovely PD?

posted over 2 years ago
9 mini
A MyParkinsonsTeam Member said:

Yes, I've had those symptoms for quite some time.Also it makes getting into a shower or bath tub rather on the adventurous side. Don't want to toast My… read more

posted about 2 years ago
1 medium

Have you noticed the severity of your symptoms increase with inflammation - allergies, infections, food insensitivities, etc.?

Have you noticed the severity of your symptoms increase with inflammation - allergies, infections, food insensitivities, etc.?

Do our collective experiences agree with the science, which is basically now saying that Parkinson's is an inflammatory disease. That is people with PD are very sensitive to things which can cause free radicals, allergies, overheating, toxins in the brain and body. These inflammatory factors lead to further neurological damage in the brain, leading to neurodegeneration leading to even… read more

edited, originally posted about 2 years ago
6 mini
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member. Constipation has been a prerequisite for me. It causes me to have various PD symptoms. Sterling

posted almost 2 years ago
6 medium

Agitation and Anxiety in PD patient with added dementia.

Agitation and Anxiety in PD patient with added dementia.

Anyone else out there experience this with their loved one with PD? We are going back to the doctor next week but in the meantime Roy's time of agitation and anxiety has increased. They call this sundowners but Roy's starts around lunchtime and can go on for several hours. It also may occur again in the evening. He is on Seroquel which I was giving at bedtime but I now try it in mid afternoon. He also takes a Xanax occasionally. I have tried turning on the… read more

posted almost 2 years ago
3 mini
A MyParkinsonsTeam Member said:

This sounds like my mother as well. It is much more likely to trigger right before she is due for her does of Sinemet....almost like clockwork 15-5 min… read more

posted 12 months ago
6 medium

I'd love to know what others are doing to help with their condition?

I'd love to know what others are doing to help with their condition?

My father was diagnosed with Parkinson's 2 years ago and I am trying to research as much as I can on ways of slowing the progression of the condition down and giving him the best quality of life as possible. I've read some people have been able to overcome the condition and hope the same for my father.

Through my research I've discovered that spine and neck alignment may play a vital part in blockages to the brain. Unfortunately we don't have… read more

posted over 2 years ago
9 mini
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member How do you keep your head up?

posted 3 months ago
2 medium

What's the real deal of the so-called apathy that people have Parkinson's get

What's the real deal of the so-called apathy that people have Parkinson's get

I woke up this morning with a new question about this whole idea of "apathy " if it takes twice as much mental and physical energy to do the same thing you did easily at what time, do you call that apathy? Another term gets thrown around a lot in Parkinson's circles and I don't doubt the physiological basis. But if a person without Parkinson's head tremors, had cramps and freezing episodes, they might have similar difficulties executing… read more

posted 12 months ago
4 mini
A MyParkinsonsTeam Member said:

Throughout the month of December I was sick. It was a cold, not the flu, but it caused such exhaustion that, looking back, I think I got to experience… read more

posted about 2 months ago
7 medium

What defines you? When asked about all the ways you’re more than your condition(s) what will you say?

What defines you? When asked about all the ways you’re more than your condition(s) what will you say?

This is how I define me

August 8, 2017
There are a number of things that define me... I will start with the following:
• I never believe a prediction that doesn’t empower me
• I have chosen a life of strength
• Pity is the worst drug, if I pity myself I am frozen
• I am not my condition. My condition does not define me
• I have to adapt. So what is MORE important??? That I am functioning as a human being in my… read more

posted over 1 year ago
5 mini
A MyParkinsonsTeam Member said:

Hon. Mrs. Bernadette, I especially like your comments about 'Looking forward' Nothing is ever accomplished by looking at the past. Each new day should… read more

posted over 1 year ago
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