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Parkinson's disease

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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Symmetrel

Symmetrel

Does Symmetrel cause nausea and excessive sweating?

A MyParkinsonsTeam Member said:

I glot all tjat stuff

posted over 4 years ago

Symmetrel

Symmetrel

I have been taking this drug for 14 year and is discontinued here in bc canada. i have coverage but i cant find it here. i think they sell them online but how can get them here where they are covered? if you have any pharmacies in canada that sell them please give me their phone numbers so i can call them.

A MyParkinsonsTeam Member said:

My husband goes to a Neurologist who is a movement disorder specialist. He AND his DNP are wonderful. Changed his meds and he's a new man. One new med… read more

posted 6 months ago

Experimental Medicine Trials

Experimental Medicine Trials

Does anyone remember the name of the lady in her 80's who posted about an experimental medicine she is taking and getting outstanding results ? Also what is the name of that medicine ? It starts with a T.

A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member , Hey I found the medicine. it is called Tasigna (Nilotinib). Michael Fox Foundation website has a lot about. I still do not… read more

posted almost 4 years ago

Do People Who Have Freezing As A Symptom Of PD, Also Have Dyskinesia From Medication?

Do People Who Have Freezing As A Symptom Of PD, Also Have Dyskinesia From Medication?

If you suffer from freezing, do you also have a problem with dyskinesia.?

A MyParkinsonsTeam Member said:

I have not experienced any of the dyskinesia problems thus far. I hope this provides some help.

posted about 3 years ago

How Frequentley Do You Take Carbidopa/Levodopa? Dosage? Do You Take Other Drugs Like Amantadine, Gabapentin, Clonazepam? How Often? Dosage?

How Frequentley Do You Take Carbidopa/Levodopa? Dosage? Do You Take Other Drugs Like Amantadine, Gabapentin, Clonazepam? How Often? Dosage?

I am wondering if some you could tell me what you have done/or are doing to prolong the effect of your medication. Also, is anyone using some kind of a pump? Sorry, I don't know what it is called. It is supposed to deliver the medication more evenly.

A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member @A MyParkinsonsTeam Member. About one year ago (I think) you posted a question under the Q&A section of this site. One of… read more

posted about 3 years ago

My Toes Won't Stop Movinu

My Toes Won't Stop Movinu

So recently my toes especially on my most affected side insist on fidgeting all the time. It has gotten so bad the skin is badly irritated. Plz tell me I'm not alone on this. I feel so weird but it hurts so bad

A MyParkinsonsTeam Member said:

Ah the mysteries and blessings of PD. Does keep us jumping, shaking, cramping. Saying its dystonia dos not make it go away. PD is a malady with many… read more

posted over 4 years ago

I'm Takfing Sinemet 5 Times A Day And Am Having A Hard Time Stickiing To The Schedule. Any Suggestions?

I'm Takfing Sinemet 5 Times A Day And Am Having A Hard Time Stickiing To The Schedule. Any Suggestions?

I've tried a couple of apps but don't especially want to keep the phone with me all the time. I get up at different times in the morning so
I have to figure out my schedule each day, which wasn't easy with the apps. Writing it down helps a lot but I still find myself forgetting several times a week.

A MyParkinsonsTeam Member said:

I have my phone set up, plus Alexa “jack take two pills” helps. Because of “selective hearing “, he sometimes ignores her too!! Lol

posted 7 months ago

Medical Marijuana?

Medical Marijuana?

Thanks to those of you who answered my question regarding medical marijuana.; however, the answers addressed sleeping issues. My issue is movement, specifically, freezing episodes which occur many times each day. Sinemet affords me only about 30 - 45 minutes of relief followed by 2 hours of extremely slow movements, if I'm able to move my left leg at all.

A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member, I am now up to 8 drops which is 8 mgs, so far nothing. Bean

posted over 2 years ago