Parkinson's disease

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Would like names of good Doctors in my area ,

Would like names of good Doctors in my area ,

We are traveling to West Palm and I need someone closer. Unless they are so good it is really worth the drive!!

A MyParkinsonsTeam Member said:

Dr Cenk Sengun. Specialized Movement Disorder Neurologist. Offices in Boca and Miami.

posted about 2 years ago

Tasmar

Tasmar

Thirty years ago I had lung cancer, treated with radiation which left me with short of breathness at times and then in in 2012 , breast cancer treated with Chemo. I'm pretty fine now. Parkinsons decided to throw it's self in about 12 years ago Mild to start but last couple of years I'm progressing to the stiffness and balance problems. I use a walker for safety and take lavodopa/carbadopa 3 x a day. Lately I'm notating a little more "off" times. would taking an adjundent drug tp Levodopa/carbodopa and… read more

A MyParkinsonsTeam Member said:

In what way

posted 6 months ago

Hallucinations when waking up. On no medicine. Is this normal for PD?

Hallucinations when waking up. On no medicine. Is this normal for PD?

A MyParkinsonsTeam Member said:

For constipation my neurologist nurse recommended to me100mil of prune juice every morning before eating, it worked immensely, l used to go to s massure… read more

posted 11 days ago

Azilect and diet

Azilect and diet

Evidently you need to be careful about what you eat on this drug because of Tyramine. It requires eating absolutely fresh food. Have you followed this regimen and what are your experiences?

A MyParkinsonsTeam Member said:

Thanks @A MyParkinsonsTeam Member I will check my source tomorrow to see if the price is lower than Canada

posted almost 3 years ago

I am the spouse need help from other care givers

I am the spouse need help from other care givers

I just need to know how to best help my spouse, he can barely, walk, has tremors, either sleeps all the time or does not sleep at night up and down toss and turn can hardly get of bed or get up from his chair. does not want to eat. thought processes are not good. Does not communicate. he has fallen several times. we live in a fifth wheel so he does not have far to go for bathroom had bladder issures. We have not had our appt. yet with the neurologist yet he is… read more

A MyParkinsonsTeam Member said:

Medication is very important, the early days when the medication is being introduced is very difficult.
I was 44 when diagnosed and it has taken 4years… read more

posted almost 2 years ago

Will the AHCA affect you personally ? In what way ?

Will the AHCA affect you personally ? In what way ?

https://en.wikipedia.org/wiki/American_Health_C...

A MyParkinsonsTeam Member said:

Seems obummer set the precedent of screwing this "tax" up quite well.

You do know it is a tax as the supreme court ruled!

posted over 2 years ago

Does anyone get the shakes all of sudden, how long do they last?

Does anyone get the shakes all of sudden, how long do they last?

I was laying in bed and my right hand shakes most of the time so I'm use to that. Well I all of sudden started shaking my right leg and arm were going crazy I couldn't stop it. I had to have my husband pick me up because everything on my right side hurt and was shaking. I have the pain from a previous surgery (radial tunnel release) it goes all the way to my neck. I think I was shaking for about 15 mins... Another question I have has anyone had… read more

A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member..yes about the shaking all over. I take ropinirole, helps a lot. One year ago I found out I have glaucoma.. Dealing with this… read more

posted over 2 years ago

Does anyone else have olfactory hallucinations?

Does anyone else have olfactory hallucinations?

For several years, I have been smelling fragrances that aren't there, some pleasant, others not. For example, I spent one whole day with the smell of our friends' well-water in my brain. That smell made me happy, as I miss our friends (they lived in another state, and now live in another country). Sometimes I smell synthetic odors, like plastic. I don't always smell things that everyone else does (exhaust, perfumes, etc.). One of the neurologists I have seen said… read more

A MyParkinsonsTeam Member said:

I woke up last night smelling strong gorgonzola! No, no dirty socks! It drove me crazy I couldn’t get back to sleep. Gone by morning.

posted 3 months ago

Does PD cause procrastination? Feel like I actually have such "little control" left. I try very hard NOT to think so hard or too far ahead!

Does PD cause procrastination? Feel like I actually have such "little control" left. I try very hard NOT to think so hard or too far ahead!

Does PD cause ME to procrastinate? or, am I just becoming so lax-a-dazicle and laid-back? At times I feel like I actually have such "little control" over me & my PD, left, so I am not sure if I am accepting my PD, OR - have I just thrown in the towel? If I have said it once, to myself, or anyone who wants to listen to my tale ("PD IS WHAT IT IS!") I know I have also repeated… read more

A MyParkinsonsTeam Member said:

If this is the question about procrastination, I am answer g, I do believe it to be yet one other effect of PD on us. Apathy is what controls me too… read more

posted almost 4 years ago

This question is for the whole purpose of helping us laugh - What are your PD symptoms Good for?

This question is for the whole purpose of helping us laugh - What are your PD symptoms Good for?

Sample answers: "I make the greatest milkshakes" [Reid Garret's father]
"With my dyskinesia I could hire out to cast seed for farmers! I wont need a spreader for fertilizer either! lol! @A MyParkinsonsTeam Member
For myself, I'm researching new floor polish powders: so far I have tested ground coffee, flour, & dried parsley!

A MyParkinsonsTeam Member said:

Exploring the things & places on your device that you never would have used except for wildly hitting the wrong spot at the wrong time on a touch… read more

posted 4 months ago
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