We are traveling to West Palm and I need someone closer. Unless they are so good it is really worth the drive!!
My mum is in the end stage of Parkinsons. The doctors have now taken her off most of the medication she was on as they say that because she has had Parkinsons for almost 22 years the medications do not work as they should. I could do with talking to others that have had or know someone that has had Parkinsons for this length of time. I'm so worried at the moment as last week mum was put on another drug to help keep her calm its called Trazadone but it has made her even worse she has been like a… read more
Evidently you need to be careful about what you eat on this drug because of Tyramine. It requires eating absolutely fresh food. Have you followed this regimen and what are your experiences?
For several years, I have been smelling fragrances that aren't there, some pleasant, others not. For example, I spent one whole day with the smell of our friends' well-water in my brain. That smell made me happy, as I miss our friends (they lived in another state, and now live in another country). Sometimes I smell synthetic odors, like plastic. I don't always smell things that everyone else does (exhaust, perfumes, etc.). One of the neurologists I have seen said that it was a Parkinsonian… read more
I just need to know how to best help my spouse, he can barely, walk, has tremors, either sleeps all the time or does not sleep at night up and down toss and turn can hardly get of bed or get up from his chair. does not want to eat. thought processes are not good. Does not communicate. he has fallen several times. we live in a fifth wheel so he does not have far to go for bathroom had bladder issures. We have not had our appt. yet with the neurologist yet he is taking carb/levo mg 3… read more
I was laying in bed and my right hand shakes most of the time so I'm use to that. Well I all of sudden started shaking my right leg and arm were going crazy I couldn't stop it. I had to have my husband pick me up because everything on my right side hurt and was shaking. I have the pain from a previous surgery (radial tunnel release) it goes all the way to my neck. I think I was shaking for about 15 mins... Another question I have has anyone had problems with their peripheral vision??? Thanks in… read more
Sample answers: "I make the greatest milkshakes" [Reid Garret's father]
"With my dyskinesia I could hire out to cast seed for farmers! I wont need a spreader for fertilizer either! lol! @A MyParkinsonsTeam Member
For myself, I'm researching new floor polish powders: so far I have tested ground coffee, flour, & dried parsley!