do you have odd memories from early childhood and Parkinson's disease | MyParkinsonsTeam

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Apokyn
A MyParkinsonsTeam Member asked a question đź’­

Is this drug like Entacapone?

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A MyParkinsonsTeam Member

Thank you for all the information I think we will stay with Entacapone. It works pretty good with less side effects.

Duopa
A MyParkinsonsTeam Member asked a question đź’­
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A MyParkinsonsTeam Member

are you still interested in info on duopa? i have been taking it via G and J tube for 6 months. it has worked for me like no other med has so far. great results!!

Parkinson’s Plus PSP
A MyParkinsonsTeam Member asked a question đź’­

Can anyone help me understand what this new diagnosis means

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A MyParkinsonsTeam Member

This website has a lot of info about PSP https://www.psp.org

My Husband Who Has PD “freezes” Up At Night And Often Tells Me That He Can Not Breathe Properly. Does Anyone Have Advice For This?
A MyParkinsonsTeam Member asked a question đź’­

He has had DBS and that has helped him. He does not take any meds at night which the neurologist recommended. Also he seems to be breathing fine to me. Any help?

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A MyParkinsonsTeam Member

I read an article about Parkinson's Wearing Off periods and it said that trouble breathing is also a side effect of "off" time. Best to check pulmonary ability as well. My hubby has the same thing.

Sinemet
A MyParkinsonsTeam Member asked a question đź’­

Does anyone use the Neupro patch along with the CL? I use the patch daily along with the CL and wondering if I'm getting too much of a good thing. I'm on the 8 mg patch - the highest they make.

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A MyParkinsonsTeam Member

Because the doctor is reluctant to put me on Sinemet before it's absolutely necessary, I was started on an older drug called Selegeline in the form of a patch changed every 24 hrs. It was originally… read more

Does Anyone Else Find Themselves Laughing Or Crying At Inappropriate Moments. I Seem To Do It A Lot. I’ve Read That This Is Common.
A MyParkinsonsTeam Member asked a question đź’­

So far I haven’t met anyone else with PD who does.

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A MyParkinsonsTeam Member

That’s the sort of thing l mean. People find it hard to understand what I’m saying if I cry at the same time. Sometimes l start to laugh for no apparent reason

Can Anyone Tell Me What Brand Of C B D Oil To Consider And Where Can I Purchase It?
A MyParkinsonsTeam Member asked a question đź’­
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A MyParkinsonsTeam Member

E, I noticed that your question and responses are from 2018. For what it is worth, WWP has been taking Greenforia Full Spectrum 1000mg CBD Tincture for 5 yrs. Greenforia is an online LLC that… read more

Memory Loss Dash From Concussion Or Early Onset Parkinson’s
A MyParkinsonsTeam Member asked a question đź’­

I am having a hard time knowing if my short term memory loss is from a concussion or from early onset Parkinson’s

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A MyParkinsonsTeam Member

Mine was made worse after two falls onto concrete head first on left side.

Duopa
A MyParkinsonsTeam Member asked a question đź’­

My husbands PD Doctor would like him try Duopa but I would like to talk with people that are actually on that program and ask, is it better than the pills, how is it working for you ?

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A MyParkinsonsTeam Member

Thanks for the info on Duopa. I really didn't know much about it before, but doesn't sound like something we would try either.

Any Caretakers Have Spouses With PD Dementia?
A MyParkinsonsTeam Member asked a question đź’­
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A MyParkinsonsTeam Member

Thank you pru. PD is an ugly disease. My silver lining is I am meeting so many wonderful people on this site! You are in my prayers as well pru!!