My mother was diagnosed with Parkinsonism in 2013. Since around April, she's suffered from increased cognitive problems (e.g., delusional episodes and vague hallucinations). Her neurological treatment team has prescribed Nuplazid but she's reluctant to take it because of its higher mortality risk and lack of a track record. Unfortunately, she has these psychotic episodes every few days and I do a poor job handling them. What should I do?
Good to share
Everyone with PD should have a dermatologist on their health team.
Excuse me, but I happened to read this and it sounds horrific!!! Who is in charge for taking care of you?! That person should loose his/her job immediately. You have to demand proper meals and… read more
I certainly do
What specific medication caused your hair loss and could you do anything to make it regrow? Did you change medication? Was it worse with only levodopa and did it help to take a combined PD medication? What did your neurologist or other doctors say about hair loss? I’d be grateful for all answers! Have a nice day and wish you all the best!!❤️🙏🏽❤️
Hello dear friends who answered my questions! I still haven’t really found out how this site works
Thank you Dale, I actually had read the article before that you suggested. From what I’ve learnt… read more
June: I’ve had PD for 8 years. I have dealt with many of the typical symptoms. But, the fatigue/exhaustion is my greatest problem and it can be overwhelming. I have travelled extensively to see the… read more
I was Mrs Claus for 9 years when I was married to this wonderful man. After the first year of being Santa in the mall (which is now torn down) his brother phoned on Christmas day & said "Well, are you done playing Santa for the year?" He answered "I don't Play Santa, I Am Santa!" And he was, 365 1/4 days of the year. Little kids would recognize him in the park in August, joyfully shout out "Santa!", run to him and shyly talk to him. He would always listen to their heart's desires & give them… read more
@A MyParkinsonsTeam Member - Thank you! I love it!
There are no local PD support groups in that I have been able to locate in my area. I’ve contacted a Parkinson’s.org ambassador for my region & he didn’t know of any either. Ideally it would geared towards Early onset, but coming up blank.
My question is have any of you started a support group for your town or county? I’m considering taking that on, but honestly I’m at a loss. Any advice would be appreciated.
I’m located in Aledo, TX. We are in between Fort Worth & Weatherford which are both… read more
If you have a YMCA in town I would check their resources.
Libido has taken a leave of absence.
CarolCominsky,
Thanks for the hug. So nice to get and sending hugs back at ya. Hope you are having a good day today. Take care, BFN!❤️🤗😊
I've talked to my v a doctor about the military bases I've been to.its alot, my dad was in the air force for 26 yrs .I grew up on military bases around the world. served in the marine corps in… read more