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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "no pd medication slows the progression of pd so why dont patients take other measures first that slow down or reverse the progression"

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I Am Trying To Find Someone Who Has Been Taking Azilect For Over 5 Years And If They Feel It Has Helped With The Slowing Of Parkisons.

I Am Trying To Find Someone Who Has Been Taking Azilect For Over 5 Years And If They Feel It Has Helped With The Slowing Of Parkisons.

There is no actual proof that azilect actually does slow the progression of Parkinsons and it hasn't been used for very many years so I am trying to find someone who has taken it for several years. It is a gamble especially with the cost.

A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member It would be best to go through the four-week session with a certified physical therapist. It is not online. You can purchase a DVD and use it for follow-up on your own. I… read more

People With Young Onset Parkinson . Do You Think Your Progression Is Fast. What Are Your Symptoms?

People With Young Onset Parkinson . Do You Think Your Progression Is Fast. What Are Your Symptoms?

I was dignosed this past February. My tremors are bad when having off time with my medicine. I have fingers and toe curling. My PD affects my right side. Lost 15 pounds . Always tired . This sucks..

A MyParkinsonsTeam Member

At Michele ? Why did your doc want u off Carbidopa/levidopa ? Did he replace it with another PD med? Most people do respond well to c/l I have dystonia with PD on variety of meds have I tried
Build… read more

PD QUESTION

PD QUESTION

I was diagnosed in 2018. I have had 2 CT scans since then and neither one showed PD. Two different neurologists say that I have a slow progressing PD. Has anyone here NOT had PD show up on a CT scan and you have been diagnosed over three years? I am beginning to think that this may not be PD. TIA
SHERRY

A MyParkinsonsTeam Member

PD has never been detected by MRI. I was also told mine was slow progressing. I have an MRI scheduled for this March. It has been 3 yrs since my last on so we'll see if there are any changes. My short… read more

How Much Do You Think Your Parkinson's Disease Has Progressed Since Your Diagnosis?

How Much Do You Think Your Parkinson's Disease Has Progressed Since Your Diagnosis?

Last of 159 replies sign up to view previous answers
A MyParkinsonsTeam Member

@zu, I have been mild for last 9 years but in last 6 months it is progressing to moderate rate

Does Sinimet Slow The Progression Of PD? Does Sinimet Make You Feels Sick All The Time?

Does Sinimet Slow The Progression Of PD? Does Sinimet Make You Feels Sick All The Time?

Sinimet makes me feel like s*** all the time so I quit taking it since I’ve been housebound and while the symptoms have worsened somewhat they have not been as much of a problem as feeling as badly as Sinimet makes me feel 24/7. My wife claims that she heard one of the doctors say that the sentiment also slows down the progression of the Parkinson’s. Does anybody know if that’s valid. The symptoms are not bad enough to want to be trapped at home feeling that poorly.

A MyParkinsonsTeam Member

Sinemet is unpredictable no PD patient are equal. .Multiple combinations is the treatment of choice but exercise is an alternative that may improve use the medication in favor of you..Parkinson is… read more

Is There A Cure For Parkinson's Yet

Is There A Cure For Parkinson's Yet

A MyParkinsonsTeam Member

Check out the Insightec website.

I Am Newly Diagnosed...is It Possible To Put Parkinson's Into Remission?

I Am Newly Diagnosed...is It Possible To Put Parkinson's Into Remission?

A MyParkinsonsTeam Member

I agree. Exercise was the first thing my neurologist told me to do. I sincerely think that I had PD long before I was diagnosed but because I was an avid runner and cyclist, it took longer for Parkie… read more

Azilect

Azilect

I'm reading the side effects of Azilect and I am doubting taking it. Can anybody tell me if you suffer side effects? Thanks for the information you can share.

A MyParkinsonsTeam Member

I have been taking Azilect for at least 7 years (I was diagnosed in 2012) along with a number of other PD drugs and, fortunately, very few side effects. Also, exercise is, in my mind, the most… read more

How Many Out There Have Parkinsonism? Do You Know The Difference Between Parkinsonism And Parkinson's?

How Many Out There Have Parkinsonism? Do You Know The Difference Between Parkinsonism And Parkinson's?

Last of 126 replies sign up to view previous answers
A MyParkinsonsTeam Member

Parkinsonism covers all the different types but if you have idiopathic Parkinson Disease, you have a much better chance of outliving those of us with atypical Parkinsonism because most people die WITH… read more