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There is no actual proof that azilect actually does slow the progression of Parkinsons and it hasn't been used for very many years so I am trying to find someone who has taken it for several years. It is a gamble especially with the cost.
@A MyParkinsonsTeam Member It would be best to go through the four-week session with a certified physical therapist. It is not online. You can purchase a DVD and use it for follow-up on your own. I… read more
I was dignosed this past February. My tremors are bad when having off time with my medicine. I have fingers and toe curling. My PD affects my right side. Lost 15 pounds . Always tired . This sucks..
At Michele ? Why did your doc want u off Carbidopa/levidopa ? Did he replace it with another PD med? Most people do respond well to c/l I have dystonia with PD on variety of meds have I tried
Build… read more
Apologies up front, but I'm kind of freaking out. Seeing my neuro in a few weeks and thinking of starting medication. Tremors are getting worse but the side effects of meds make me nervous. Saw my GP dr last week and she asked why I was not on meds yet and she went into how this isn't going to get any better, it'll only get worse until my body shuts down and I'll be "locked in" within a few years. I'm 62 years old and on my own. I work full time and don't have an option of retirement. I was… read more
I'm blessed to have found a M.D.S. who is empathetic and knowledgeable to help guide me on this unexpected journey in my golden years. I canceled a recent appointment with my primary. Her concerns… read more
@zu, I have been mild for last 9 years but in last 6 months it is progressing to moderate rate
Do any of you feel like you are spending too much time dwelling on all things PD? I was diagnosed 5/3/22 with PD and was determined to find out all there was on PD information out there.
I’m now wanting to push back and not spend too much time engaged in PD things. What about you all?
We all have bad days but you can't let that overshadow your life there more good days than the bad ones if you want you just have to want get out enjoy life I've had pd for 8 years diagnosed but many… read more
My diagnosis was in August of 2018. Shouldn't I have reached the point of accepting the New Normal? I've been to a counselor and "spilled my guts". At least I got out the helpless frustration and anger/sadness I feel... How long should it take? Is it ever going to feel normal? Or is it just a day at a time?
Mary/2/18/2019
I take Allipuronol ever day for the gout and watch what I eat.
I am encouraged by what you say. Same thing, but I am newly Dx'd and suspect b/c of my physical fitness level, visible symptoms may lay low. Only time will tell and the treatment is the same, either… read more
Sinimet makes me feel like s*** all the time so I quit taking it since I’ve been housebound and while the symptoms have worsened somewhat they have not been as much of a problem as feeling as badly as Sinimet makes me feel 24/7. My wife claims that she heard one of the doctors say that the sentiment also slows down the progression of the Parkinson’s. Does anybody know if that’s valid. The symptoms are not bad enough to want to be trapped at home feeling that poorly.
I was diagnosed in 2018. I have had 2 CT scans since then and neither one showed PD. Two different neurologists say that I have a slow progressing PD. Has anyone here NOT had PD show up on a CT scan and you have been diagnosed over three years? I am beginning to think that this may not be PD. TIA
SHERRY
And there’s always a DatScan if there are questions. Also an MRI will give information as well. But the previously described physical exam is often all that’s needed.
Great advice we r all wired differently and a real blessing it is