Parkinson's disease

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We spend a lot of time taking PD very seriously. Anyone want to share a funny story or incident that happend to them?

We spend a lot of time taking PD very seriously. Anyone want to share a funny story or incident that happend to them?

I went to a new internal medicine doctor because mine moved. It took her forever to come in and see me, when she did, she had a print out of nearly 20 pages in her hand about PD. I think she was googling PD, because then she starts to ask these crazy questions about Dyskinesia. All I needed was a flue shot. So now I am on the hunt for another internal medicine doctor.

A MyParkinsonsTeam Member said:

I'm on Ropinirole and my neurologist just added Sinemet (Levodopa/Carbidopa). I haven't started it. I should be getting it in the mail this week. I look… read more

posted over 3 years ago

Does anyone have "internal tremor" and what does it feel like?

Does anyone have "internal tremor" and what does it feel like?

I wonder if internal tremor is simply, for example, the tremors I have under my tongue. Or, could it be something you experience much deeper? Sometimes, my heart feels like it's going to jump out of my chest. It is a feeling of uneasiness and it causes anxiety. I had this feeling shortly after being diagnosed, but it responded to propranolol/I believe that's Inderal, which is a beta blocker. I would have to ask my son Tim exactly what the beta blocker… read more

A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member, do you think you have internal tremors?

posted over 2 years ago

Overdose of carbidopa/levodopa

Overdose of carbidopa/levodopa

I just accidentally took 2 carbidopa/levodopa tabs at the same time; one is timed released, a 50/200 mg and the second one; 25/100 mg which is the one I take 4 times/per day. I'm concerned about side effects.

A MyParkinsonsTeam Member said:

I did

posted 12 months ago

Do your PD meds ever cause an increase in your PD symptoms (excluding expected side effects)?

Do your PD meds ever cause an increase in your PD symptoms (excluding expected side effects)?

My movement disorder specialist has been working with my meds so that I have as little
“off” time as possible (diagnosed in 2007 at age 47). I’m taking four PD meds: Sinemet (25/100 & 50/200 CR), Mirapex (3.75 ER), Azilec and Amantidine. The Mirapex and Azilec are once per day, Amantidine 3X. The Sinemet - well that’s a tough one. My doctor has given me options on how much I can take based on when my off periods occur.… read more

A MyParkinsonsTeam Member said:

@yes, I have that also. I am just fine going about my business until about 2 in the afternoon when my body just stops working. It is such an effort to… read more

posted 7 days ago

What is the best way to deal with long haul flights (New Zealand) if you have Parkinson's, for example, medication and change of time zones?

What is the best way to deal with long haul flights (New Zealand) if you have Parkinson's, for example, medication and change of time zones?

I am worried about the different times interfering with my dosage. Do I take the medication at British times or the time zone I am in, before meals or at the right time according to Britain? I don't want to feel ill if I can prevent it of course.

A MyParkinsonsTeam Member said:

Thanks, there's part of me scared and part of me excited!

posted about 1 year ago

I'm takfing Sinemet 5 times a day and am having a hard time stickiing to the schedule. Any suggestions?

I'm takfing Sinemet 5 times a day and am having a hard time stickiing to the schedule. Any suggestions?

I've tried a couple of apps but don't especially want to keep the phone with me all the time. I get up at different times in the morning so
I have to figure out my schedule each day, which wasn't easy with the apps. Writing it down helps a lot but I still find myself forgetting several times a week.

A MyParkinsonsTeam Member said:

I have my phone set up, plus Alexa “jack take two pills” helps. Because of “selective hearing “, he sometimes ignores her too!! Lol

posted 3 months ago

Do you keep a journal?

Do you keep a journal?

I do not keep a daily journal.. I should, but, ........ Every time I see a doctor, always questions, like:
How many times have you fallen, it the last 30 days

What percentage of the time, are you "off"?

How many hours of sleep, do you average a night?

and so on, I always make a guess, not a good way of keeping my doctor informed of my PD.

A MyParkinsonsTeam Member said:

I know the feeling. I don't sleep like I should I know. Maybe 4 to 6 hrs a night. I sleep in my recliner alot. I see the doc. In may I don't think he… read more

posted about 3 years ago