Parkinson's disease

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How do you deal with social isolation

How do you deal with social isolation

How do you deal with it
This is why Parkinsons awareness is so important other people have no understanding and sadly it’s up to people with PD to educate them.Its why forums like this and local groups are so Important. They are great sources of information and comfort but it’s up to us to empower ourselves by engaging and not hiding.The problem is many of us live in two worlds the world of normality and the world of disability afforded to us by medication.Its cruel in the… read more

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A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member Perhaps try going to events with friends that are in quieter locations or perhaps inviting your friends to come to your… read more

posted about 1 hour ago
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Has anyone received a mis-diagnosis of Essential Tremor? How did you get a correct diagnosis?

Has anyone received a mis-diagnosis of Essential Tremor? How did you get a correct diagnosis?

I am a 42-year-old female with what I believe to be Medication Induced Parkinsonism. So far I have been misdiagnosed with cervical spinal myelopathy and then with Essential Tremor. I am sure this is Parkinsonism induced by 20 years on Zoloft for migraine prevention, but I can't find a Neuro who will listen. Any suggestions? Thank you!

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A MyParkinsonsTeam Member said:

Believe more no Dr will say anything concerning another Drs medications or diagnosis. Been to Law Firms, you will have to sue all Companys that… read more

posted about 18 hours ago
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I have been diagnosed with Vascular Parkinson's which affects my walking and sometimes my balance.

I have been diagnosed with Vascular Parkinson's which affects my walking and sometimes my balance.

I was recently given this diagnosis which affects my walking. Is there anyone who has any comments or suggestions regarding the best treatment for this? I do shuffle my feet a lot and sometimes my balance is affected. I try to stay away from salty food and caffeine.

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A MyParkinsonsTeam Member said:

What is LSVT BIG?

posted about 21 hours ago
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Have you discovered any ‘life hacks’ that make your day to day living with Parkinson’s any easier?

Have you discovered any ‘life hacks’ that make your day to day living with Parkinson’s any easier?

What are the best tips of simple things you were able to do, or adjustments that you were able to make, that helped make an everyday task easier?

(A life hack is something small that you do to make life easier, for example using liquid soap so you don’t drop bar soap, or putting a satin sheet on your bed to make it easier to turn over.)

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A MyParkinsonsTeam Member said:

I have found nozzles for my hoses that have an on/off valve instead of having to squeeze the handle when the muscle tension is hurting. I love to garden… read more

posted 1 day ago
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Does anyone as parkinson's proggeses tend to isolate and not want to do anything

Does anyone as parkinson's proggeses tend to isolate and not want to do anything

The last year I seem to just not have the will to do anything really. I use to love to go out to eat and shop of bargains and now I hate the thought of it I get so worked up that I end up not going. I do work my 40 hour week and go to church on Sunday but that is all I have the energy or desire to do.

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A MyParkinsonsTeam Member said:

Yeah, I don't feel like doing too much, most of the time. I'm usually not all peppy and energetic, i like just hanging out, but then I get all guilty,… read more

posted 1 day ago
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Is this parkinsons or Dementia s

Is this parkinsons or Dementia s

MY LO with parkinsons has mood changes .
He seems to find fault with every thing .
He will start with the simplest of things like I only asked you a question .Why are you telling me what I did not ask .Then he works himself into a outburst and goes on and on .Is this parkinsons or Dementia .Has anyone experienced this .

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A MyParkinsonsTeam Member said:

Hi YolandaSilva
Perhaps you could accompany her on her next visit to the neurologist or make an appointment with the neurologist to let them know your… read more

posted 1 day ago
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Fatigue, malaise, extreme exhaustion!

Fatigue, malaise, extreme exhaustion!

Is exhaustion a Parkinson's symptom? I have stuff I really want to do but the fatigue & listlessness stops me cold.

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A MyParkinsonsTeam Member said:

I'm with you Tom, but then I"m an OLD sob. Hang in there man the alternate is much worse!

posted 1 day ago
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Does Melatonin work for sleep?

Does Melatonin work for sleep?

This is just something that happened to me which I would like to share. I sleep terrible at night usually going to bed at 12 and waking at 3:30-4:00 a.m. I tried the melatonin gummies which someone recommended. I tried them but they did not seem to work at all for me. But since I loved the taste I took them for three months and after about three months they finally worked. I could not believe it. Now I am going to bed at 11:00 and waking at 7:30 each morning. If I need to use the… read more

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A MyParkinsonsTeam Member said:

My daughter takes hemp bombs and they do help her

posted 1 day ago
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How to deal with confusion

How to deal with confusion

My Dad gets really confused. Is it best to agree with him or continue to argue. He's has periods of time when he thinks he's in a nursing home and wonders when he's going home. Seems to have no memory of where he is. He is and always has been in his own home with my mother. Told me this morning he just got home from a VFW meeting. He hasn't done that for at least 20 years. PD or just part of getting aging, he's 82

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A MyParkinsonsTeam Member said:

Could be both. Never thought of Sundowners, but she is at her lowest ( depression and anxiety and hypervigilant around 10:30 at night

posted 1 day ago
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Home modifications for Parkinson's Disease

Home modifications for Parkinson's Disease

Has anyone had to make major modifications to your home to accommodate PD issues? Are there any agencies or groups that provide financial help for home modifications? We are going to need an elevator in order to stay in our home.

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A MyParkinsonsTeam Member said:

My daughter has caseworkers and drs visits ,viaFacetime

posted 1 day ago
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