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Nicole Riina first began experiencing symptoms of Parkinson’s disease in 2007, when she was 34 years old. “I started with a visible unilateral tremor that my doctors wrote off as anxiety,” she recalled. But the tremor wasn’t the only sign.
Over time, she found herself falling frequently — up and down stairs — and tripping over things that weren’t really there. Even her handwriting changed, becoming difficult to read. “It was described as a doctor’s scrawl,” she said.
Despite these clear symptoms, years passed before Nicole received a formal diagnosis. It wasn’t until 2017 — a full decade later — that a movement disorder specialist confirmed the diagnosis: She was living with Parkinson’s disease. Nicole was 43.
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Mobility challenges have become a central part of Nicole’s experience with Parkinson’s. Walking, talking, climbing up and down stairs, and rolling over in bed were among the daily activities most affected by her symptoms, she said. As the condition progressed, even small movements took greater effort.
These physical limitations have had a ripple effect on her daily routines and her family life — including how she gets around her own home and how she plans outings with her loved ones.
For Nicole, occupational therapy became an essential part of adapting to Parkinson’s-related mobility changes. “Occupational therapy has taught me how to use accessories and assistive devices to do most activities — dressing, eating, walking with walkers and arm canes, and personal hygiene tasks,” she said.
She also found value in physical therapy. “Physical therapy assists with my strength and mobility,” Nicole explained. However, she added that it’s temporary for now, due to financial reasons. “My insurance only covers a predetermined number of appointments, and I can’t afford the out-of-pocket expense of PT each year.”
Nicole’s mobility aids have become essential tools for maintaining independence and participating in life with her family. “Walkers help me leave my room and participate in family time,” she shared. “My wheelchair helps me when I am out of the house, and experiencing life through my 13-year-old’s eyes.”
These tools do more than provide physical support — they open doors to emotional connection, social participation, and cherished memories with loved ones. With them, Nicole continues to show up for moments that matter most.
Nicole also chose to pursue deep brain stimulation (or DBS), a surgical option used by some people with Parkinson’s to help control movement symptoms. “I had deep brain stimulation to interrupt progression, and it was the best decision I have ever made,” she said.
Mobility challenges have also prompted Nicole to make major adjustments in her lifestyle — especially when it comes to safety. After a serious fall in May 2024, she transitioned to working from home to reduce the odds of falling again.
Driving is another area where Nicole has had to draw new boundaries. “I am limited on how long I can drive at one time, and I am no longer able to drive (or leave the house at all) in inclement weather,” she said. “Driving at night is out of the question.”
These changes aren’t always easy — but for Nicole, they are necessary to maintain her well-being and reduce risk.
Nicole has learned a great deal since her diagnosis, and she wishes she’d had a clearer picture of the condition earlier on. “Parkinson’s is a syndrome, made up of a multitude of signs and symptoms, experienced differently by each person with PD,” she said. “Each experience is unique, a personal roller coaster of physical, mental, and emotional highs and lows.”
Her advice to others living with Parkinson’s — or caring for someone who is — reflects this insight: “Don’t compare yourself, or your loved one, to others with PD. We are each our own experience,” Nicole said.
“Rest if — and when — you need it,” she advised people with Parkinson’s. “It’s OK to be tired, say no to others, and put yourself first. Don’t give in, and don’t give up.”
Even in the face of daily challenges, Nicole stays grounded in her determination and sense of self. “I may have PD,” she said, “but it does not have me.”
On MyParkinsonsTeam, people share their experiences with Parkinson’s disease, get advice, and find support from others who understand.
How have mobility symptoms shaped your day-to-day life or relationships? Let others know in the comments below.
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