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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Does The Time Of Day Affect A Person With Parkinson's?

How Does The Time Of Day Affect A Person With Parkinson's?

What is 'sundowning'?

A MyParkinsonsTeam Member said:

Having Pd is frustrating and there are a lot of side effects to some of the meds. but you can learn to live a good long life with it. You may have to slow down because you get tired but if you pace yourself and learn to accept help when people or friends offer it. Its not easy but its not cancer als, Ms. or a stroke so I think I can live with that and if dementia is in the forecast i'll deal with when i comes I have too many things I want to do and a lot more people to tick off

posted over 5 years ago
A MyParkinsonsTeam Member said:

In my situation I have discovered that Parkinson's has come along with hypothyroid. Recently in addition to the MD prescribed Armour, I have added a Thyroid supplement. My body responded almost immediately. My afternoon energy level rebounded. I seem to have my evenings back. It's still early to tell for sure but so far this is been a key milestone in the treatment plan. PD and hypothyroid have some common roots. It would be worth your time to work with your MD to see if your thyroid function is in range and then, with some guidance, explore nutritional supplementation. Always consider whether you are gluten sensitive. Recent research is showing that for many of us gluten in our diet can lead to neurological damage and thyroid damage. All this can take place over time outside of our awareness of the issue. After the fact we wonder why do I have these conditions. Then the damage is already done. We can stop continued exposure with a little lifestyle modification. I have become a big proponent of the gluten free approach. When I make a mistake and gluten creeps into my diet I can tell immediately (PD symptoms worsen). Lessons learned!

posted almost 6 years ago
A MyParkinsonsTeam Member said:

The drug that helped with hullicinations is Risperidone. The bottle says it is generic for Risperidal tabs He takes three a day. 0.5

posted over 5 years ago
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member do you have sleep apnea diagnosed? It is possible that you do and may need a CPAP machine to make sure you are resting well with your oxygen level assured. Also, my husband was having dreams and acting them out in his sleep and he never felt rested either until his neurologist prescribed Klonopin at bedtime and now he rests quietly for the most part all night and feels rested in the mornings. Maybe one of these suggestions will help you. We will pray for you and that God will grant you more restful nights. God Bless and keep smiling.

posted over 5 years ago
A MyParkinsonsTeam Member said:

When I go all day long , I find that I collapse at night. Mornings are my best time, and I find that if I get over stimulated my tremors kick in. Pacing myself is really important, and being home by 4:00 helps me keep myself balance.

posted almost 6 years ago
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