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A MyParkinsonsTeam Member asked a question 💭
Carrollton, TX

We PDers have all carefully avoided any mention of our sexuality...including sexual identity, sexual attraction and sexual desire. Has Parkinson's Disease caused you to lose any of these?

January 12, 2016
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A MyParkinsonsTeam Member

You need to sit down and talk with him about how you feel. Some times we think we know what the other person is thinking and then we find out we were a hundred miles from right.
Men are so different from women they don't like to talk about stuff but they will if you say we need to talk about it. It might make you both feel a little better. It is a difficult spot to be in MY heart goes out to you because you should still play with each other and have fun Just because you have been sick doesn't mean you are not the same person. I don't know if you believe in the power of praying but I believe in it so I will pray for you both Hope I helped some

January 26, 2016
A MyParkinsonsTeam Member

My husband Bob states the following: "Have had symptoms of PD 2 - 3 years. Have extreme scoliosis, back problems, back pain and ED. Take numerous meds, Sinemet for PD. Started out with vacumn pump for ED. Currently, occasionally use Levitra (about every 3rd time.) We all go by norms, with sex the standard appears to be 2x per week. That is really tough on me. I don't know if I want to give up the other 5-6 times a week. Teasing, but true. Praise be to God." For me sex is good but cuddling and pillow talk are really important to my feeling intimate with Bob. God bless us all, everyone. Touch is important to all people.

January 15, 2016 (edited)
A MyParkinsonsTeam Member

Interesting question. I'm afraid that PD has adversely affected my sex drive. After tremors make me look so appealing all day long, my aching body at the end of the day, add the fact that I am so restless all night long....there isn't much sex appeal left. We still love each other....married over 40 years, but the sex has ended. We no longer share a bed so that we both get the rest that we desperately need. Parkinson's is devious....it steals little parts of you and it changes you. This is a big part of my life that I miss so much. I can finally sleep a few hours each night in a bed....I was sleeping in a recliner chair for over a year, but I don't sleep well even now.

January 13, 2016
A MyParkinsonsTeam Member

My husband and I are 80 and 82 and we are very close. We have given up on sex and it bothers neither of us. We sleep in the same bed and I am wakened when he is restless. We take comfort from being close enough to touch and it is somehow a great comfort to me to just have him there. It will be hard if we are separated. I am considering Assisted Living very soon and have found one where I can stay with him. I am checking into a split bed so that we can have the convenience of a hospital bed for tending him, but the beds are on coasters so that we can still be side by side. My sympathy goes out to those who are younger and still have the urge, but not the physical stamina. One of my friends has had to give up sex because of her partner's heart condition and it is very hard on both of them. Sex can be life threatening to some and medication plays a big part in producing the desire. Talk to your doctor. And my prayers are with you.

January 13, 2016
A MyParkinsonsTeam Member

I don't have any sexual desire with my Parkinson's . At first when my problem started it was that I hit the effect of too much stimulation to the point where you could not do anything with hip problems with that part of the problem you would not have an orgasm aegis were aggravated with Cree working as an organism organism field. After that I just gave up . My husband has not given up but he won't let me not have any desire which I don't leave me alone which is nice . You will have to excuse my dictation as it does not pick up my dictation properly sometimes . As I said I just don't have any desire either it activated me to be over desired end then it went to no desire . Hope that explains something .

January 13, 2016

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A MyParkinsonsTeam Member asked a question 💭
Carrollton, TX