@A MyParkinsonsTeam Member

Hi Barbara,

I take 12 Sinemet 25/100mg and 4 Comtan 200mg (entacapone 200mg) every day for my Stage 3 PD.. My MDS/PD Specialist said he has many patients taking over +30 tabs of Sinemet and still experience a fantastic quality of life....

You might asked your Specialist about adding Comtan 200mg to take with his Sinemet. The purpose of this med is that it allow the C/L to last longer and work better within his brain... Alan

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A MyParki...

Thank you Allan for your post. I have a problem taking Carbidopa/Levodopa- it does not seem to affect my motor symptoms plus the fact that I was diagnosed with MSA. I still take 1-2 tablets (25/100) 4x a day. When I take only one tablet, I feel I am not coordinated but when take 2 tablets I begin to have some tremors of my lips, I think some dyskinesia.

As I have posted frequently on this group, my Movement Disorder Specialist increased my bedtime dose of Carbadopa CR on the very first visit I had with him. I had not been able to sleep thru the night for more than 6 months because of having "wearing off" episodes at about 2am. Then I went to see him at a speaking engagement he was doing and complained about foot pain. He said "you do not need to be in pain, as long as it has been 2 hours since your last dose, just take another one." What a relief that was for me and he is the head of the department at a large hospital. The only time I get in pain now is when I am not paying close attention to my symptoms. I only take 4 per day on a regular basis but absolutely will not suffer any more!

Coconut oil also works in a smoothie. I make my husband one with yogurt and a banana and some milk. I freeze the yogurt and partially defrost it in the microwave 40 seconds. The oil is hardly detectable. It also works pretty well in a cup of bullion.

Thank you Alan. I am very grateful for the information you provide. PD was the last thing diagnosed in me, not currently in crisis, but have been prior to diagnosis. My current concern and preoccupation, is to just keep breathing and know all I can about COPD (ASTHMA, CHRONIC BRONCHITIS, EMPHYSEMA, fibrosis, granulomas, etc) as I am now considered stage 4. Just got out of hospital again. I have major life style changes as I adjust to medicine and treatment changes.
But PD activity is going on too and I feel overwhelmed and wish I could just open my brain and pour info in.
Sorry, miss you guys. Know u understand. Dealing with loved ones in such denial. They just can't believe all this is going on with me.

Well, thank you again. You have all been in my heart and prayers. I hope there are more good days than bad for all of u. Know that just knowing you are there even when I can't get to you gives me such a quieting sense of Peace and closeness with you. Am I making any sense?

Take care - I love you all. Huggs