Has anyone been diagnosed with Progressive Supranuclear Palsy....otherwise known as PSP.? it is a atypical Parkinsonian disease.

Has anyone been diagnosed with Progressive Supranuclear Palsy....otherwise known as PSP.? it is a atypical Parkinsonian disease.

I recently saw a new neurologist who diagnosed my with PSP. As I understand it it affects the eyes. He also asked my to try Rytary which I have been on for about a month and find that is helping me in my motor skills.

A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member. Thanks for your encouragement. I was diagnosed in Feb. 2013 by a neurologist and in 2014 changed to a movement specialist at Loma Linda University then Jan 2016 I asked to see another doctor within the same group because I had lost confidence in this doctor.. My new neurologist is the one who diagnosed me with PSP. Also I have trouble, freezing, walking, and turning so he signed me up for BIG therapy, ( I begin it next week) which I took about one year ago. I have an appointment with him at the end of this month and plan to ask him more questions about my prognosis, etc. I have quite a list going!

posted over 3 years ago
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member. Hello...I have not been diagnosed with same as you but they do call me Atypical Parkinson's. I do have problems with my eyes as well. I just looked into Rytary just today and my neurologist thinks I need to balance my meds at this point to see what reactions are still there. Had a stay in the hospital because something caused my inability to walk so my meds were "re-arranged", hence the need to stabilize number, time and dosage. Tell me more about your symptoms. Thank you. Sterling

posted over 3 years ago
A MyParkinsonsTeam Member said:

How does a person get across a personal Email or phone number?

posted over 1 year ago
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member. Hi Alice. I still don't know any more about PSP. Tell me more about your eyes. Can you follow an object in front..up and down and sideways? Apparently, that is a big problem for someone with PSP. Have you learned anything new since we posted each other last? Stay close. Sterling

posted over 3 years ago
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member. My doctor gave me a series of tests including the one with my eyes. I passed everything. My doctor says I don't have Progressive Supraneuclear Palsy. I hope she's right...I am assuming she is right and I do not have it. :-)

What other diagnostic tools can your doctor use to determine if you do or do not have PSP? Will you pursue other ways and means? Have you been prescribed any medication for it? Please stay in touch. I feel blessed that I dodged this "bullet" but sad for you if you do have this disease. May God Abide. Sterling

posted over 3 years ago
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