Dyskinesia - read the book Good By Parkinson’s Hello Life . It tells you how to overcome Dyskinesia with Excercise . Fantastic 😃

My husband is 75 years old and has PD for 15 years. He was mostly on Senemet 25/50 one or two pills 4x a day with selegine 1x per day. In 2018 a dr switched him to Rytary 195 2 pills 4x day and Rasagline 1mg 1x per day. At about the same time he added on Amantadine. About 1 year and a half ago I got him off the Amantadine. It was causing Impulse Control Behavior: for my husband it was sex and he was like a pervert and dirty old man. The Drs said "Oh no it's not the amantadine! Amantidine is used to curb ICB's! But I knew different b/c I was living with him. It was hell getting him off that drug but no more ICB. Recently I started to notice that after his mid day pill of Rytary he was nasty and aggressive. If he didn't get what he wanted when he wanted he went nuts. He was paranoid about his wallet and money. He would scream and yell at the aide, and sometimes leave the house alone and go walking alone. We reduced the Rytary to 195 + 95, 4x per day. Still it would happen. The dr. added on Seroquel. 25 mg. I would give him that as needed ususally 2 in the morning, one midday maybe 2 at night. That could make him like a zombie, as well as lose balance more, fall, etc. One morning he went off on me after his morning med. We had a good morning routine with showering and getting dressed before I went to work. So I knew the Rytary was causing it. That morning gave him 3 seroquel and let the aide know he was off. It was like the flood gates were open and he couldn't stop. Even when I got home he was a bit calmer and still nasty. I took him to the emergency room to be evaluated. (That again was hell). Now he is back on Senemet, 50/100 3x per day and he doesn't need the Seroquel also called Quetiapine. He is pleasant and nice, although sometimes it is a little more difficult to move. But sometimes he walks so well he doen't know what to do with himself. Bottom line: there is no cure for PD and drugs have side effects. Everybody is different and you have to advocate for your loved one or yourself.

Have been on carbodopalevodopa since 2010 when I was diagnosed. IR -- 2pills 3x day; CR -- 2 at 7 am, 1.5 at noon and 1.5 at 5pm. Am pretty careful to space them out and keep eating times at suggested intervals. Am not always good at starting at 7, so must rearrange times for other doses, keeping eating at regular intervals. (1 hr after pills and 2.5 hrs before pills).. also take Azilect (1mg) w sinemet (25-100). for PD. Prescribed in 2010 w Sinemet. Take other meds for other ills (seizures, Depression, IBS, GERD, and hyperparathyroidism +vitamins &CBD). Whatever, it seems to be working as there's been little progression in 11 years). Hugs to all

Beware of what you take I was on at least 20 pills a day and ended up in the hospital for 11 days with hallucinations. I know Parkinson's is a guessing game with the meds. But come on now you put your trust in your doctor. they couldnt see this coming. I am just frustrated.

@A MyParkinsonsTeam Member,

Now that I know what PD symptom really are, I believe for me they started around age of 49, and wasn't officially diagnosed at age 59..... What brought things to a head, was that a small tremor in my left hand for years I thought were caused from my arthritic left shoulder joint.... Finally when I could bear no more, I had a TSR surgery, that immediately gave me total relief of the shoulder pain, but maintained the tremor that continued to get worse...

After testing several non-PD meds with my family doctor, I was referred to Neurologist that specialized in movement disorders... I told him I wanted to use the generic form of the best meds for PD, and considered the Gold Standard of treatment...

He recommended an aggressive treatment plan, in order for me to enjoy the best Quality of Life.... He had also confirmed and diagnosed me as having Stage 3 PD.... He started me off with 9 Sinemet 25/100mg and 3 Comtan (Entacapone) 200mg, and I have done quite well on that dosage and has eliminated all PD symptoms, and lessened the overwhelming fatigue I had before diagnoses. About 9 months ago, during a 6 month checkup, thought I could even improve my situation, and increased both meds by 30%....

So far for the past 8 months on 12 Sinemet and 4 Comtan has worked fantastic for me, with no negative side effects... When asked, my Doc, mentioned that he has several PD patient on over 30 Sinemet tabs a day with excellent results, over a long period to time....

I take joint supplements and Omega 3 Oils to ease the normal stiffness due to my osteoarthritis... So now I can get up out of bed immediately in the morning with no aches or pain, and go all day with no problems typically associated with PD symptoms.... Oh which I am very grateful for !

I also take meds for my anxiety & depression for over 30+ years that have continued to work with my PD meds and still have no nasty side effects... Thanks for bring up this questions... Alan

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