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August 5, 2016
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A MyParkinsonsTeam Member

I'm taking it 3 times a day and I don't have any problems . Fingers crossed. At one time the doctor wanted me to take 4 a day but my tremors increased. I also take mirapex . Google it and you'll find out about carbidopa . Is the carbidopa the only medicine you take. Good luck .

August 9, 2016
A MyParkinsonsTeam Member

It made me sick with dry heaves and hullucinations. Not taking meds, just Mucunna & amino acid supplements.

August 7, 2016
A MyParkinsonsTeam Member

There are no answers. I'm on 16 caps of Mucunna per day. My walking is slower with more forward motion and my left arm & hand is not working...fingers keep shaking and muscles are pulling...don't know how to get it to relax when sitting or laying...also loosing strength in my right now. I take amino supplements which I get from Vitamin Shop in Jupiter. Also the Mucunna (Dopa 400) 60mg of levadopa. Going to see another neurologist Thursday, 9/01. Need my strength since my husband has had three surgeries. One was scraping a cancer in his bladder, then he had a colosotomy and right now wears a colostomy bag for a while until he is strong enough to have the cancer in his colon removed. He also has a bag from his kidney.. I call him the bag man ( funny). I drive him to doctors & hospital.
Praying for a miracle.

August 29, 2016
A MyParkinsonsTeam Member

Thanks great insight and advice. No easy answers with PD.

August 28, 2016
A MyParkinsonsTeam Member

I take 12 Rytary a day but have no idea how it compares.I have a lot less off, no delusions

August 12, 2016

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Huntsville, AL

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