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How Many Out There Have Parkinsonism? Do You Know The Difference Between Parkinsonism And Parkinson's?

How Many Out There Have Parkinsonism? Do You Know The Difference Between Parkinsonism And Parkinson's?

A MyParkinsonsTeam Member said:

"Parkinsonism is the syndrome of having a combination of slowness of movement, stiffness and tremor. Many related diseases can cause parkinsonism, or parkinsonian symptoms, including Parkinson’s disease, vascular parkinsonism and atypical parkinson’s syndromes such as multiple-systems atrophy (MSA) and corticobasal degeneration (CBD). Parkinson’s disease specifically refers to patients who have parkinsonism, do not have any atypical features, and who have an essentially normal MRI that excludes other causes for their parkinsonian symptoms. In many cases, Parkinson’s disease is referred to as “idiopathic” Parkinson’s disease, meaning that all other causes of parkinsonism have been eliminated. Of all patients with parkinsonism, patients with Parkinson’s disease respond best and the longest to medications and are potential candidates for deep brain stimulation surgery"~Dr. Nader Pouraitan M.D. [Neurosurgeon] n.d. from: https://www.sharecare.com/health/parkinsons-dis... . Retrieved April 13,2017

posted about 3 years ago
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member
I enjoyed your post, especially your attitude. We cannot predict the future of our progression of PD. One doctor, Michael Okun, M.D. has said THAT PD patients can live with quality life for 30 years with no dramatic changes. He said there are 60 year old, 70 year old, 80 year old, 90 year old AND even 100 year old PD-ers! I do not want to live until 100!! But if the the Good Lord wants me and lets me grow that old.. Thank you very much, I will do my best to be continue being a "good" person, loving life!!

It is senseless to worry about things we have little or no control over!!! As PD-ers, we must educate ourselves, do NOT let ourselves be lulled into the complacency that our doctors "KNOW EVERYTHING>' We must be responsible for ourselves.and the care we need!! We need to remain diligent, but not all consumed!!

posted about 3 years ago
A MyParkinsonsTeam Member said:

It's interesting...for every answer we get, there are at least two more questions. As my own research continues, I am beginning to see why it is so tough or seemingly so to get a clear diagnosis of PD.

AND it is beginning to look more like the "idiopathic" diagnosis is a general bucket to cover the fact that what we call PD or Parkinsonism or whatever seems to be a progressive system wide shutdown of the whole body with dopamine deprivation pretty much leading the way.

Before you cloud up and rain on me, this is the opinion of an IT systems analyst, not anybody in the MD world. I observe, I see cause and effect, I see linkages - they may be accurate, but they are based on the current facts available - and there are a LOT of unknowns.

It is my observation that as soon as things get complex, as things are with PD, it means we are missing something obvious. I would be more comfortable if I could see more research in the causes of PD, not just the symptoms. I have seen references to Lewy bodies, etc. and while informative, seem to only address a part of the problems - something is causing the protein clumping, etc. What is it? More enzymes controlling other portions of the brain seem to be affected - Why?

Concentrate on a portion of something and the specialist is created...the up side of that is more about something more can be isolated more quickly. The down side is narrowing the focus can also mean the total picture is partly excluded and a linkage missed.

I have now gotten back on my soap box (as I promised not do do), so I will get down. I also should not bother to say I won't get back on it again, because I probably will...

posted about 3 years ago
A MyParkinsonsTeam Member said:

All of you must REMEMBER there is NO CLINICAL TEST for either disease!!! We would all like to have PD or Parkinsons as a cokie cutter disease... as would the medical community would. Unfortunately the disease rects differently, and progresses in each of us differently.. Probably everyone who has responded to this question is on very different medications, not just doses... I am quite sure we all Have similar symptoms, but none the same or at the same degrees. As one mPT member quoted a doctor out of Gainesville, FL "PDis one of the most difficult diseases to treat." Think of yourself as being unique..... Yes one of a kind@!!

edited, originally posted about 3 years ago
A MyParkinsonsTeam Member said:

I'm straight up Early Onset Parkinson's Disease when I was officially diagnosed. Well idiopathic I am because everything else was ruled out after numerous test results. Parkinson's Disease Awareness Month. I'm definitely fully aware of it. It's definitely locked in with me.

edited, originally posted about 3 years ago
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