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How Many Out There Have Parkinsonism? Do You Know The Difference Between Parkinsonism And Parkinson's?

How Many Out There Have Parkinsonism? Do You Know The Difference Between Parkinsonism And Parkinson's?

posted April 13, 2017
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A MyParkinsonsTeam Member

"Parkinsonism is the syndrome of having a combination of slowness of movement, stiffness and tremor. Many related diseases can cause parkinsonism, or parkinsonian symptoms, including Parkinson’s disease, vascular parkinsonism and atypical parkinson’s syndromes such as multiple-systems atrophy (MSA) and corticobasal degeneration (CBD). Parkinson’s disease specifically refers to patients who have parkinsonism, do not have any atypical features, and who have an essentially normal MRI that excludes other causes for their parkinsonian symptoms. In many cases, Parkinson’s disease is referred to as “idiopathic” Parkinson’s disease, meaning that all other causes of parkinsonism have been eliminated. Of all patients with parkinsonism, patients with Parkinson’s disease respond best and the longest to medications and are potential candidates for deep brain stimulation surgery"~Dr. Nader Pouraitan M.D. [Neurosurgeon] n.d. from: https://www.sharecare.com/health/parkinsons-dis... . Retrieved April 13,2017

posted April 13, 2017
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member
I enjoyed your post, especially your attitude. We cannot predict the future of our progression of PD. One doctor, Michael Okun, M.D. has said THAT PD patients can live with quality life for 30 years with no dramatic changes. He said there are 60 year old, 70 year old, 80 year old, 90 year old AND even 100 year old PD-ers! I do not want to live until 100!! But if the the Good Lord wants me and lets me grow that old.. Thank you very much, I will do my best to be continue being a "good" person, loving life!!

It is senseless to worry about things we have little or no control over!!! As PD-ers, we must educate ourselves, do NOT let ourselves be lulled into the complacency that our doctors "KNOW EVERYTHING>' We must be responsible for ourselves.and the care we need!! We need to remain diligent, but not all consumed!!

posted April 16, 2017
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member @A MyParkinsonsTeam Member - there is a Very Good reason you don't like salt. To avoid having salt clump in rainy or humid weather, Morton started adding aluminum to it. Aluminum is at best Not one of the minerals essential to our bodies' health. At worst, it may even cause cancer. I have switched to rock salt, either Redmond or pink Himalayan. Sometimes & like to mix it 1/2 & 1/2 with sea salt. If I can get iodized, I prefer that because iodine Is a mineral essential to our bodies' health.

posted February 19
A MyParkinsonsTeam Member

yes and i have a parkonsonism known as Multiple System Atrophy. Diagnosis is 5-10 years life span after onset and we are in third year.

posted July 29
A MyParkinsonsTeam Member

I've been diagnosed with Parkinsonism, which is Parkinsons+
I'd (hoped) the doctors at OHSU would have more answers for me after my genetic test results came in.
I've all the symptoms of PD along with Nystagmus and Diplopia, Depression, Anxiety, and Insomnia, and Neuropathic Pain.
I've been prescribed and have been taking Carbidopa-levodopa. It's helped with my tremors, stiffness and slowness. Which is all it's meant to help with. It's prescribed to people that have been diagnosed with Parkinson's Disease. So, if it's helping with my diagnosed Parkinsonism then go figure.
More testing is on my horizon. My advice is to get tough and stay tough. Try not to lean on anyone and do your very best not to fall down!

posted October 26

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