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I develop mild dyskinesia about 2 and a 1/2 months after starting my medication. When standing still I waver back-and-forth almost like a little dance. Its noticeable.
My question is has any of you had dyskinesia early in your treatment and were able to get rid of it or bring it under control or am i destind to just get really bad with this dyskinesia and get worse this time goes on ? Tried lowering the dose That didn't work and now on Amantadine that's not working .
For me, it didn't show up for about 2 years after starting meds. As I understand it, dyskinesia that is caused by meds is the result of too much levodopa in the muscles that carbidopa can't counteract. When I get dyskinesia now, I can usually adjust the levocarb pill I take besides @stalevo and pramipexole over the next doses to reduce the levodopa a bit. I'm very affected by how much complex physical activity I do. If I do lots of walking in difficult areas where foot placement is important, I seem to 'burn' through levodopa and don't get much dyskinesia. If I rest a lot or stroll calmly on a flat open surface I end up with dyskinesia.
Exercise is the best thing. I know what your talking about it, I have developed it over time. The best advice get some really funny Parkinson's T-shirts and just start moving and dancing out in public. I always tell people anyone can sit still, it takes real talent to keep moving like this. The more you let it stress you out, the worse it will be. I went through a phase like this and just decided last year to screw it and not worry about what others are thinking or looking at.
Good day, I bid you greetings from down under Australia.
Re dyskinesia.
Yes I have been there and done that.
The cause is from prolonged use of dopermine replacement therapy and/or being over medicated.
I underwent DEEP BRAIN STIMULATION SURGERY in 2009 with successful outcomes. Dyskinesia was reduced by almost 100 %.
If you would like more details please don't hesitate to ask, I am happy to oblige.
MAINTAIN A WINNING POSITION.
ALVEO / STEWART
@A MyParkinsonsTeam Member
https://rarediseases.org/rare-diseases/tardive-....
Did you see this website on dyskinesia? Take a look at if you haven't already. Very interesting stuff. Sterling
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