For Those W/non-motor Parkinson's (w/o Resting Tremor) How Long Did It Take To Get Scan Ordered-(Dat,orPet)
Did it go through the first time your Neurologist ordered it? Or did you have to APPEAL?
How did you deal with this?
If you feel you need a DatScan to confirm your dx, try volunteering for a PD study. You can find trials in your area at the Fox Trial Finder website https://foxtrialfinder.michaeljfox.org/ . I'm participating in the PPMI study, they are following my progression for the next 5 years and I get a DatScan once a year. All the test are free and you'll be seen by experts in PD research.
@A MyParkinsonsTeam Member,
Well that's cruel!! You mean you had to pay out of pocket for your Dat Scan???
I have been extremely lucky I.have had 2 DAT scans. One about a year after diagnosis 2008 and another at the end of last year. It confirmed as the first one that I had Parkinson's Disease. They only took about three weeks from referral to actually get one. I feel sorry for those of you that have been turned down and had to appeal or even not been able to have one. I read in a study that a Consultant friend of mine have me ( not in Neurology) that a DAT scan wasn't that helpful. Of course if I was told I should or could have a scan I would have one.
Sharon
Same as @A MyParkinsonsTeam Member
Ins. wouldn't pay, but I had so many symptoms that my Movement Disorder Specialist (neurologist) knew after a few simple tests that I had PD. I've also seen a neuropsyologist and she put me through a 6 hour test and found mild cognative impairment. This doctor has a great presentation on this topic: https://www.davisphinneyfoundation.org/video/co...
@A MyParkinsonsTeam Member Did not have Dat Scan - way too expensive. Certain insurance companies are against it, even though it's no longer experimental.
Has Anyone Had The DAT Scan Done That Measures The Dopamine In The Brain?
I Don't Have Tremor And It Makes Me Wonder If I Have Parkinson's Disease. What Have I Got?