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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

For Those W/non-motor Parkinson's (w/o Resting Tremor) How Long Did It Take To Get Scan Ordered-(Dat,orPet)

A MyParkinsonsTeam Member asked a question 💭
Raleigh, NC

Did it go through the first time your Neurologist ordered it? Or did you have to APPEAL?
How did you deal with this?

September 29, 2017
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A MyParkinsonsTeam Member

If you feel you need a DatScan to confirm your dx, try volunteering for a PD study. You can find trials in your area at the Fox Trial Finder website https://foxtrialfinder.michaeljfox.org/ . I'm participating in the PPMI study, they are following my progression for the next 5 years and I get a DatScan once a year. All the test are free and you'll be seen by experts in PD research.

October 3, 2017
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member,
Well that's cruel!! You mean you had to pay out of pocket for your Dat Scan???

September 29, 2017
A MyParkinsonsTeam Member

I have been extremely lucky I.have had 2 DAT scans. One about a year after diagnosis 2008 and another at the end of last year. It confirmed as the first one that I had Parkinson's Disease. They only took about three weeks from referral to actually get one. I feel sorry for those of you that have been turned down and had to appeal or even not been able to have one. I read in a study that a Consultant friend of mine have me ( not in Neurology) that a DAT scan wasn't that helpful. Of course if I was told I should or could have a scan I would have one.

Sharon

July 26, 2020
A MyParkinsonsTeam Member

Same as @A MyParkinsonsTeam Member
Ins. wouldn't pay, but I had so many symptoms that my Movement Disorder Specialist (neurologist) knew after a few simple tests that I had PD. I've also seen a neuropsyologist and she put me through a 6 hour test and found mild cognative impairment. This doctor has a great presentation on this topic: https://www.davisphinneyfoundation.org/video/co...

October 2, 2017
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member Did not have Dat Scan - way too expensive. Certain insurance companies are against it, even though it's no longer experimental.

October 1, 2017

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