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For Those W/non-motor Parkinson's (w/o Resting Tremor) How Long Did It Take To Get Scan Ordered-(Dat,orPet)

For Those W/non-motor Parkinson's (w/o Resting Tremor) How Long Did It Take To Get Scan Ordered-(Dat,orPet)

Did it go through the first time your Neurologist ordered it? Or did you have to APPEAL?
How did you deal with this?

A MyParkinsonsTeam Member said:

If you feel you need a DatScan to confirm your dx, try volunteering for a PD study. You can find trials in your area at the Fox Trial Finder website https://foxtrialfinder.michaeljfox.org/ . I'm participating in the PPMI study, they are following my progression for the next 5 years and I get a DatScan once a year. All the test are free and you'll be seen by experts in PD research.

posted almost 3 years ago
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member
Hi Chrissy, It is my understanding that , A DatScan is used to confirm a doctor's diagnosis since it is an imaging brain scan using a radioactive substance. This scanner cannot tell the difference between the different diseases which mimic PD and it can only measure how much dopamine is still left in one's brain. Since it is an expehsive test not covered by insurance, it is usually not commonly ordered by neurologists as they have other ways of diagnosing PD. There is still no exact definitive test to diagnose PD. I hope this helps and that you have a great day.

posted almost 3 years ago
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member,
Well that's cruel!! You mean you had to pay out of pocket for your Dat Scan???

posted almost 3 years ago
A MyParkinsonsTeam Member said:

Same as @A MyParkinsonsTeam Member
Ins. wouldn't pay, but I had so many symptoms that my Movement Disorder Specialist (neurologist) knew after a few simple tests that I had PD. I've also seen a neuropsyologist and she put me through a 6 hour test and found mild cognative impairment. This doctor has a great presentation on this topic: https://www.davisphinneyfoundation.org/video/co...

posted almost 3 years ago
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member Did not have Dat Scan - way too expensive. Certain insurance companies are against it, even though it's no longer experimental.

posted almost 3 years ago
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