mood swings sleeps a lot during day sleeps well at night .hands are a bit jerky sometimes so he spills his drinks balance is not the greatest right now has changed over the last month real good some days and then problems with legs have to support him or he falls pd for 12 years and he is 83 am his sole caregiver is this a normal way not seeing dr for 3 month s he can still walk in house without cane on good days seems he is good for 3-4 days and then confused and problems with legs .i get… read more
I understand the frustration as PD decline is observed. I try to "fix" (control) moments in time when I see a danger risk with my spouse's balance. It interferes with the relationship co-partnering as I speak out...tensions arise. Tensions become symptoms...so I work at staying calm. It's not easy sometimes watching the progression develop. That's why support groups and sites such as Q&A are important to caregivers. We know we are not alone. Staying tuned in to new ideas and possibilities is important to the dream of cure.
You don't have to wait until the next appointment - give the doctor a call. And also call your local Agency on Aging; they can help you with ideas for resources - and their help is free.
My partner only sees her consultant every 6 months unless she feels she needs to see him. For the good days she has a few bad days after as she tries to do as much as she can whilst she can resulting in a few days rest. She is only 42 so infuriated when she is tired for days, hard to ask her to do less than normal without making her feel bad about herself. Hope you have a good new year and happy to listen if you need
My wife has expressed that same feeling when I show my frustration. But, as we talk it out, her frustrations come out and we tear up together and, temporarily, wash away the anxieties that attach to PD. The excitement to our walk is that we have become closer. I do love helping her with needs (dressing, turn fan on, toilet help, getting out of bed, exercises, pill time help, etc.) that pop up even though her favorite word has become my name. We now have a baby monitor in use so I can hear in the other room when she calls "my name"..It is a name above all names (except the name of Jesus). lol
Keep on keeping on Marta. We send hugs and prayers,
Gordy and Bev