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Is Anyone Here An Early Onset Patient?

Is Anyone Here An Early Onset Patient?

Hello, I am here on behalf of my husband. He is 30, and although not diagnosed with actual PD, he has symptoms (shaking, inability to balance, falling, slurred speech, slow reaction time) and abnormal dopamine levels. He suffered a traumatic brain injury while in Iraq. He is on medications for a seizure disorder and benign cyst he developed due to the injury.

It seems that with each passing year there is a new hurtle, and never ending struggle to try and compensate for his injury. Now it seems… read more

A MyParkinsonsTeam Member said:

Hi... I'm an early onset. Been showing some symptoms for a few years (since i was about 35 or 36), but developed consistant tremors this past fall. By the way, I just turned 40 last month.

I'm in the middle of being diagnosed, but the neurologists are strongly learning to pd. I'm also trying to figure out if I'll be able to finish my Army career.

I don't have any head trauma, and my scans look good, so they're calling it an atypical presentation of idiopathic Parkinson's.

My meds are helping greatly with tremors but I get VERY moody... my wife and I are learning how to work through my "crunchy" moods.

Anyway, enough about me, but if you have questions, feel free to ask... i'm not shy about answering things if I can.

My best wishes to your husband and you. If you want, you canb also message me through Facebook... Stephen Mosack Jr.

Take care

posted almost 3 years ago
A MyParkinsonsTeam Member said:

I have early onset Parkinson’s. I have had 2 brain injuries as a child and where I was from, we lived next to crops and they sprayed pesticides on their plants from an airplane. My Parkinson’s has significantly gotten worse. I have a deep brain stimulator and have had it for 3 years. I’ve had problems fallling, shuffling my feet, slurring words, unable to brush my hair, teeth, bathe myself, dress
Myself and have had problems feeding myself. I’ve been in rehabilitation hospital 5 x’s. My deep brain stimulator is
turned on both sides and has a high setting. I take 2 - 25/100 sinemet every 4 hours and 1 - 50/200 sinemet cr every 5 hours. I probably had my symptoms since 2002
When I was 32

posted almost 3 years ago
A MyParkinsonsTeam Member said:

Also a veteran of Iraq. I’m thinking my PD was caused either by the malaria medicine: mefloquine, or by the burn pit smoke.

posted 5 months ago
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member, I looked up a few sites that may be of some help to you and your husband. The first two offer help for veterans with brain injuries. The second group lists Parkinson's support groups in your area if he does get a Parkinson's diagnosis. The last group are links to some excellent Parkinson's foundations. There are also many sites associated with seizure disorders.

I'd reach out to organizations like these. They may be able to provide you with much needed support or direct you to someone who can provide that support. From what I've read, you've way too much going on in your young life to go it alone.

When time allows, do some research. It is amazing how much useful information you can gather rather quickly. Some of the information may be unsettling, but don't let it deter you from getting the information that you will find incredibly helpful.

If there is anything I can do to help, let me know. Put @A MyParkinsonsTeam Member in the response and I'll get a notification. I hope for the best for you and your husband.

https://www.tampa.va.gov/services/Polytrauma_Tr...
http://biaf.org/

https://www.bryanglazerfamilyjcc.com/fitness-an...
https://www.tgh.org/services/neurology/movement...
https://health.usf.edu/medicine/neurology/mvdis...

https://parkinson.org/
https://www.apdaparkinson.org/
https://www.michaeljfox.org/
https://www.davisphinneyfoundation.org/

posted almost 3 years ago
A MyParkinsonsTeam Member said:

Head injury, rural farm country, crop dusting; the only thing you're missing is exposure to the radiation from testing nuclear weapons out in the midwest. I spent the better part of my 1st 10 years living in the hardest hit states. Of course, I have no deep brain stimulator; I think you out-trump me on that.

Both my parents died of the same kind of leukemia, and one of my brothers, 13 months older than me, had 2 different kinds of cancer, one of which is associated with radiation exposure, before he died of the 2nd one. Not to be a conspiracy theorist, but whether knowingly or not, some things done to help in one way seems to explode, in a sense, and does more unexpected harm in unexpected ways. Just a thought....

posted almost 3 years ago
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