I also deal with Dyskinesia, but mine is in my mouth. I have to question many situations beforehand due to this. I was just recently able to see a dentist when Dyskinesia showed some improvement. Sorry that I don’t know the answer for your particular situation.

@A MyParkinsonsTeam Member, I guess living in a rural area is a problem. I used to live in a rural area, and the drives were very long for a specialist.
I just read my answer after I read your questions: I missed saying it was my left shoulder that was replaced; usually one of the most painful surgeries of all, but this one was not. A PT is a physical therapist, most of whom must have a PhD in it, though my brother had his before it was required. When a refer to my PCP, I am referring to my primary care physician. I forgot not everyone uses those shortcuts.
It's easy for me to make suggestions to others about undergoing various procedures but the fact is I have anxiety attacks when I need to be sedated, even if it's for an endoscopy, upper or lower. I often think as a chicken I should be laying more eggs.
I guess in your position I would be in no hurry for surgery, and in fact, I need my other shoulder replaced but I have decided I will have to be in a lot more pain. It all goes back to a mishap which was not dangerous to me, but in my sedated state my perception was that I was going to die. Ever since I must be extra sedated to calm me down.
I truly hope you can find some kind of relief. Pain can certainly make life more difficult.
Hugs for you and your husband.
Teresa

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A MyParki...

I’m a physical therapist and if your doctor can do an anterior approach to your hip replacement recovery time is much faster and no hip precautions. A posterior lateral approach will have hip precautions of no hip flexion past 90 degrees, no crossing your legs and avoid turning your toes inward......all of which could make your hip likely to dislocate. Not all doctors do an anterior approach so you might shop doctors a little bit. Good luck!

@A MyParkinsonsTeam Member, howdy, Linda. It sounds a bit warmer where you are than where I am. Yesterday we hit 64 degrees, then last night we had snow and rain mixed. 🙁
My shoulder surgery was postponed, but I am losing balance and strength so quickly I may not be able to go though with it at all at this rate, but I'm not making any real decisions yet. My sleep study was also postponed. And my doctor appts? Videophone! No need for a ride that way, but...
2 weeks ago I had been not feeling well for several days, and of course it was a Friday evening when things bottomed out. I called an ambulance because I was scared and didn't know what else to do. My blood pressure was too high, too low, and everywhere in between. And my pulse was irregular and too low according to my BP monitor, on top of which I was lightheaded, perspiring heavily, and chest pain. The hospital found nothing wrong, but couldn't check my pacemaker because they didn't have the equipment (strange since that's where I had it put in). They sent me home feeling rather angry because of how I was treated. The following week i was able to get hold of the cardiologist who check my pacemaker remotely. It was fine, and no Afib, however, they found i had been throwing PVCs for several days, thus I didn't feel well. So, if you don't know, a PVC is Premature Ventricular Contraction. Without trying to use too many words, the monitor doesn't pick up PVCs. Everyone has them on occasion, but when you have too many, for too long, it can be a problem. For me, it's a problem. Right now they're running me every couple of nights to see if it gets better on it's own. It WILL get better; I insist! 👍🏻
Are you staying out of trouble with your mask and gloves? I am...unfortunately. lol. My granddaughter takes me for a ride now and then, after she sterilizes her car. But she won't let me out until I'm home. What a sweetie.
Hugs, and stay well,
Teresa

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@A MyParkinsonsTeam Member, I apologise too for the delay in getting your message. Did your shoulder operation go ahead? If so, I guess you still have quite a long time of recuperation ahead of you. I hope all went well and you will soon be on the mend and feeling the benefit.

The hip pain, freezing and loss of balance/frequent falls etc dyskinesia have got me very low at times. However, beautiful Wales is bathed in Spring sunshine of late and it is lovely to get into the garden and enjoy nature. These frightening times of the world pandemic makes one appreciate what we have and to take nothing for granted. The kindness and bravery of the many workers and volunteers helping the vulnerable, often at risk of their own safety is amazing.

I look forward to hearing from you when you are able.

Regards,
Linda

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