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I Have Had PD 16 Yrs, Suffer Dyskinesia And Need A Hip Replacement. Is It Advisable?

I Have Had PD 16 Yrs, Suffer Dyskinesia And Need A Hip Replacement. Is It Advisable?

The last few years I have suffered much hip pain and I have been on a waiting list for a replacement hip. I was taking 300mg Stalevo total daily, but have reduced to 250 (50mg x 5 Times) + Mirapexin. (1 slow release nightly) in order to reduce severity of dyskinesia. Has reduced dyskinesia but also reduced mobility etc. and still prone to it when under stress. My surgeon witnessed this the day before my hi op was due and is afraid my uncontrolled writhing could put my new hip out and makes… read more

A MyParkinsonsTeam Member said:

I also deal with Dyskinesia, but mine is in my mouth. I have to question many situations beforehand due to this. I was just recently able to see a dentist when Dyskinesia showed some improvement. Sorry that I don’t know the answer for your particular situation.

posted about 3 years ago
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member, I guess living in a rural area is a problem. I used to live in a rural area, and the drives were very long for a specialist.
I just read my answer after I read your questions: I missed saying it was my left shoulder that was replaced; usually one of the most painful surgeries of all, but this one was not. A PT is a physical therapist, most of whom must have a PhD in it, though my brother had his before it was required. When a refer to my PCP, I am referring to my primary care physician. I forgot not everyone uses those shortcuts.
It's easy for me to make suggestions to others about undergoing various procedures but the fact is I have anxiety attacks when I need to be sedated, even if it's for an endoscopy, upper or lower. I often think as a chicken I should be laying more eggs.
I guess in your position I would be in no hurry for surgery, and in fact, I need my other shoulder replaced but I have decided I will have to be in a lot more pain. It all goes back to a mishap which was not dangerous to me, but in my sedated state my perception was that I was going to die. Ever since I must be extra sedated to calm me down.
I truly hope you can find some kind of relief. Pain can certainly make life more difficult.
Hugs for you and your husband.

posted about 3 years ago
A MyParkinsonsTeam Member said:

I’m a physical therapist and if your doctor can do an anterior approach to your hip replacement recovery time is much faster and no hip precautions. A posterior lateral approach will have hip precautions of no hip flexion past 90 degrees, no crossing your legs and avoid turning your toes inward......all of which could make your hip likely to dislocate. Not all doctors do an anterior approach so you might shop doctors a little bit. Good luck!

posted about 3 years ago
A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member, I apologise too for the delay in getting your message. Did your shoulder operation go ahead? If so, I guess you still have quite a long time of recuperation ahead of you. I hope all went well and you will soon be on the mend and feeling the benefit.

The hip pain, freezing and loss of balance/frequent falls etc dyskinesia have got me very low at times. However, beautiful Wales is bathed in Spring sunshine of late and it is lovely to get into the garden and enjoy nature. These frightening times of the world pandemic makes one appreciate what we have and to take nothing for granted. The kindness and bravery of the many workers and volunteers helping the vulnerable, often at risk of their own safety is amazing.

I look forward to hearing from you when you are able.


posted about 2 years ago
A MyParkinsonsTeam Member said:

My sympathies @A MyParkinsonsTeam Member that must be horrid. ope it continues to Improve. Did you find anything that helped?

posted almost 3 years ago
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