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Anyone Taking Inbrija Inhaler For Off Times?

Anyone Taking Inbrija Inhaler For Off Times?

My husband's neurologist just prescribed the Inbrijia inhaler to help with "off" times. He was taking the Apokyn injection as needed but it caused orthostatic hypotension (low blood pressure) and it he passed out (Apoykyn is not like levodopa but similar to Miralax). Inbrijia is a levodopa powder that goes into a rescue inhaler for those bad "off" times. He hasn't started it yet but was wondering if anyone has had experience with this new medication. Thanks.

A MyParkinsonsTeam Member said:

I just started with it. During a bad off period, I used it. Inhaled the 1st half and "woosh" felt it almost immediately. A bit of a head rush in a good way. Followed up with the 2nd dose and in about 10 mins felt much better. Took my Rytary ignoring the dose of Inbrija that I needed. It acts fast, as long as you can take a deep breath and hold for a few seconds. The only side effect I had was the feeling of dryness/cough from inhaling a powder. Not bad considering.

posted 11 months ago
A MyParkinsonsTeam Member said:

I was curious about the inhaler 6months ago, Ive since gotten one . It works great. Its a powder and a bit tricky at first but once I learned how to use, it works great

posted about 1 year ago
A MyParkinsonsTeam Member said:

Check out TAF (The Assistance Fund). Scroll down to Parkinson's and you can apply, if they have additional fund available. https://tafcares.org/program-listing/

posted over 1 year ago
A MyParkinsonsTeam Member said:

Thanks for the correction. I did mean Mirapex (autocorrected me) and it does cause orthostatic hypotension. It happened to my husband twice once when he passed out and hit his head. Both movement disorder specialist and pharmacist confirmed. He doesn't take anymore. I said "orthostatic hypotension" (low blood pressure) but forgot to say upon standing. My husband takes his blood pressure daily. https://stanfordhealthcare.org/medical-conditio...

edited, originally posted over 1 year ago
A MyParkinsonsTeam Member said:

It comes with an inhaler device and you put in a foiled capsule that has the medication in it in powder form. When you close the top it punctures the medication and you inhale. You need 2 capsules for a full dose. Also, check out the link to their website in previous post.

edited, originally posted over 1 year ago
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