Has Any One Diagnosed With PD Gone On A Lifetime Change Of No Gluten ? | MyParkinsonsTeam

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Has Any One Diagnosed With PD Gone On A Lifetime Change Of No Gluten ?
A MyParkinsonsTeam Member asked a question 💭
posted May 9, 2019
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A MyParkinsonsTeam Member

Part3>
In conclusion, from what I have learned from doing my own research, I DO think what we eat plays a significant connected role in Inflammation and PD. I ave always heard that old saying that goes “‘you are what you eat”. I am not saying inflammation is the one cause to PD...Instead only trying to share what I have learned through others’ research and studies and I am—putting different studies ( puzzle pieces) together at least for me helps me to see the bigger picture of one of the many problems-in PD. I have started the gluten free diet and have seen my own inflammation go down in parts of my body I can see and feel. I have only been on my gluten free diet for a couple of weeks but besides seeing my inflammation go down, I have experienced terrible pain in areas go away. In addition, I have way more energy and my “brain fog” has gone away. And sometimes I feel so much better like the “old me-before PD” that I forget I really should and still really need my sleep... Yet, I have been so excited that I had to share this info with all of you. Please realize and understand my health history is way different from everyone else’s health history, we all are very different, special, and very unique, so please take what you like from this and throw the rest or all of this info away! Plus, realize I’m not any doctor nor expert or specialist. I’m just a highly intelligent person that is highly driven to help figure out what I can about PD because I have PD, and I know I can not wait another goodness knows how long before the experts can find any per say “Cure for PD” and/or cause of PD! This is by no mean any cure just a few tiny pieces to the massive problem known as PD!

posted May 11, 2019
A MyParkinsonsTeam Member

Teresa
Are you talking about a pump to deliver medication or actually a feeding tube?

I have a tube in place, but it is to deliver medication bipassing the stomach, it is a duopa pump. My neuologist has me on (carbadopa/levadopa) duopa a liiquid form of sinemet and it has one wonders for me.

It has given me hope! My statement is that I can beat this disease mark my words!
Jim

posted May 23, 2019
A MyParkinsonsTeam Member

This is one of the resons i use the duopa pump. When you reach stage 5, you have nothing to loose trying something that might just work to curb this disease. The duopa pump has given me a new outlook on life. Call it something to live for. Its the same medication as the pill but dont go through the digestive process of the stomach. For me it's brought me from a wheel chair to walking without a cane I can all gain write that you can read among lots of other things.
I detest this diease and I will beat it.
Jim

My great great grand daughter. Someone to live for!!!

posted May 10, 2019
A MyParkinsonsTeam Member

I was having horrible GI issues about 5 years ago. It was when my autonomic issues started but before PD diagnosis. I completely stopped gluten.not even a trace amount. It can be difficult but I had amazing positive changes within a couple weeks. I tecently had the 23 and me test done through the Fox Foundation and i do have a mutation in my celiac gene.

posted May 10, 2019
A MyParkinsonsTeam Member

Thank you Theresa for the clear and insightful response
It does help and may help to alleviate some of the problems I have
Thank you 🙏

posted May 17, 2019

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