Hi I Would Like To Know What People Expect When They Attend A Parkinsons Support Group Meeting. Have You Had A Good Or Bad Experience | MyParkinsonsTeam

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Hi I Would Like To Know What People Expect When They Attend A Parkinsons Support Group Meeting. Have You Had A Good Or Bad Experience
A MyParkinsonsTeam Member asked a question 💭
posted September 14, 2019
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A MyParkinsonsTeam Member

I get it. I felt that way in PD Groups. Talk to the people. Talk to the caregivers. They have interesting life stories. They are motivated to attend meetings. Learn how they cope. Those are skills that you will eventually need. After a while, you won't even notice some of the things that are bothering you now!

posted October 23, 2019
A MyParkinsonsTeam Member

When I was forced to retire in2006 my neurologist pushed me to go to a support group meeting. I refused. After much badgering from my neurologist and my bride I literally woke up July 1, 2007 and decided to start my own #$_#$$_ support group. Held our first meeting on July 28,2007. We had six attendee. Today the support group meets twice a month and averages 35 to 40 attendees per meeting. My personal opinion is support groups are a great way to get first hand information on how to live with PD. But like anything in life you oñly get out of a support group what you are willing to put into it.

posted September 28, 2019
A MyParkinsonsTeam Member

I found that the most valuable info was the FREE PD exercise nearby. Have met and become friends with other class members. The support meetings didn't help me that much, as comments from the audience were not encouraged. If you find a good supportive meeting, then keep going!

posted September 14, 2019
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member: If you haven't already, go to parkinsons.org, the click on "Resources and Support", then click on "In Your Area". That may lead you to a local group, or you can look into joining an online group, which is what I am a member. The advantage of course of an online group is that you don't need to be in the immediate area to participate.

posted December 28, 2023
A MyParkinsonsTeam Member

We have a support group that has upwards of 100 members. It meets once a month and there is no charge. Anyone who is interested in PD is welcome. We have wonderful speakers - movement disorder specialists, speech therapists, physical therapists, drug reps,etc, The info is good BUT I feel like I'm at a freak show. I go and see those who have more outward symptoms than I have and think that is what I have to look forward to. Sometimes I leave early because I find looking at PDers is very depressing. I think that I also look like a freak so I no longer enjoy being out in public. One more thing. The group has an extensive lending library.

posted October 7, 2019

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