My book club understands why I can’t be there all the time, why I might need to leave early, why I need to be warm. Mostly, why I still need to be a member. Has anyone else done anything creative to adapt to our situation ( whether physical or social) Id like to hear everyone s ideas.
Answer Summary
Members shared creative and uplifting ways they have adapted to living with Parkinson's, from joining book clubs and mindfulness groups to... Read more
Yes. I don’t mind giving my advice about my journey, however, I want to stay positive and learn about how others have adapted. Otherwise, all we do is complain. This IS a difficult journey, I would like to share my work arounds and have others share theirs.
Hi Susan426, I love gardening and I took a job at a local greenhouse. I am slow, stagger a lot but I am still capable of doing things, and like your book club, the owners know my issue and allow me to do what I feel I am capable of doing. Every season has its own beauty, and I love to be surrounded by the beauty of the flowers.
Wow! Jane and Greg! I love the way you are doing what you love while creating awareness! We all need to be as out there as we can be. The next thing that I am doing is planning a trip to the Oregon coast. We are going to rent a small motor home, which will be a place for me to chill if I can’t go hiking. I am also going to look into an all terrain scooter. I’ll join my husband and daughter when I can. Still
Staying in hotels at night.
Hi Susan, I remember reading MJ Fox’s book years ago because I felt so bad for him. Lo & behold, I end up with it too. I don’t think I have any one creative way of handling Parkisnson’s but I know prayer, counseling, support, reading & watching comedies, going somewhere on a ‘good’ day, not beating myself up for the bad days in bed, church & just laughing with my husband help me. I love deep meaning in life but find a little joy in a new outfit, new makeup, new perfume, new books, a good tv show etc. I always loved being a woman.
I’ve joined a monthly book club, a monthly mindfulness group, attend monthly Parkinson’s support group meetings, attend local APDA events when I can, and had been going to weekly Tai Chi classes but now (since 3 weeks ago) instead attend Parkinson’s Exercise classes twice weekly at the Y - my attendance at these classes also gives me and my partner full use of all Y equipment and machines including the indoor pool! Time to get a swimsuit!
My physical therapist is very pleased that the PD exercise program includes balance, strengthening, stretching, and even some Tai Chi movements. A very well rounded program!