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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My book club understands why I can’t be there all the time, why I might need to leave early, why I need to be warm. Mostly, why I still need to be a member. Has anyone else done anything creative to adapt to our situation ( whether physical or social) Id like to hear everyone s ideas.

June 13
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Answer Summary

Members shared creative and uplifting ways they have adapted to living with Parkinson's, from joining book clubs and mindfulness groups to... Read more

Members shared creative and uplifting ways they have adapted to living with Parkinson's, from joining book clubs and mindfulness groups to working at a greenhouse and running awareness campaigns like 'Show Us Your Shake.' Several members highlighted the power of staying active, with exercise, Tai Chi, Parkinson's-specific fitness classes, music therapy, and even planning accessible road trips helping them maintain joy and independence. A recurring theme was the importance of staying socially connected, finding purpose in what you love, and refusing to let the disease quietly steal your happiness one day at a time.

A MyParkinsonsTeam Member

Yes. I don’t mind giving my advice about my journey, however, I want to stay positive and learn about how others have adapted. Otherwise, all we do is complain. This IS a difficult journey, I would like to share my work arounds and have others share theirs.

June 15
A MyParkinsonsTeam Member

Hi Susan426, I love gardening and I took a job at a local greenhouse. I am slow, stagger a lot but I am still capable of doing things, and like your book club, the owners know my issue and allow me to do what I feel I am capable of doing. Every season has its own beauty, and I love to be surrounded by the beauty of the flowers.

June 16
A MyParkinsonsTeam Member

Wow! Jane and Greg! I love the way you are doing what you love while creating awareness! We all need to be as out there as we can be. The next thing that I am doing is planning a trip to the Oregon coast. We are going to rent a small motor home, which will be a place for me to chill if I can’t go hiking. I am also going to look into an all terrain scooter. I’ll join my husband and daughter when I can. Still
Staying in hotels at night.

June 16
A MyParkinsonsTeam Member

Hi Susan, I remember reading MJ Fox’s book years ago because I felt so bad for him. Lo & behold, I end up with it too. I don’t think I have any one creative way of handling Parkisnson’s but I know prayer, counseling, support, reading & watching comedies, going somewhere on a ‘good’ day, not beating myself up for the bad days in bed, church & just laughing with my husband help me. I love deep meaning in life but find a little joy in a new outfit, new makeup, new perfume, new books, a good tv show etc. I always loved being a woman.

June 16
A MyParkinsonsTeam Member

I’ve joined a monthly book club, a monthly mindfulness group, attend monthly Parkinson’s support group meetings, attend local APDA events when I can, and had been going to weekly Tai Chi classes but now (since 3 weeks ago) instead attend Parkinson’s Exercise classes twice weekly at the Y - my attendance at these classes also gives me and my partner full use of all Y equipment and machines including the indoor pool! Time to get a swimsuit!
My physical therapist is very pleased that the PD exercise program includes balance, strengthening, stretching, and even some Tai Chi movements. A very well rounded program!

July 10

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