My movement disorder specialist has been working with my meds so that I have as little
“off” time as possible (diagnosed in 2007 at age 47). I’m taking four PD meds: Sinemet (25/100 & 50/200 CR), Mirapex (3.75 ER), Azilec and Amantidine. The Mirapex and Azilec are once per day, Amantidine 3X. The Sinemet - well that’s a tough one. My doctor has given me options on how much I can take based on when my off periods occur. I was taking 2 25/100 pills every 3 1/2 to 4 hours and 2 50/200 CR… read more
I was taking entacpone with the carb/levo and after about a year we discovered the entacapone was causing side effects which at first we thought were pd symptoms. Went off the entacapone and felt great. The side effects of entacapone were extreme fatigue, restlessness in legs, cramping of toes, brain fog. Feel so much better now! Thankful the neurologist figured that out.
I take 3 Amantadine 100mg caplets per day. My dreams are generally active though I would not go so far as to say they are nightmares - but they are generally vivid, and usually interesting. The nice thing about the dreams is I am physically active and can move freely. The bad thing is that the topics are generally dark and sinister. Some are post-apocalyptic, others about fighting and flight. Once I jumped out of bed because I dreamed I was being attacked, smacked my face on my nightstand and bled all over. I never considered that the Amantadine might be the culprit.
On the bright side, I have no tremors and haven’t had a cold or the flu since I began this med. As with all PD meds, there are trade offs. Finding the right balance of meds is the tough part. I’m still looking.
Best wishes.
After my mid-day dose, My walking and mobility go "south", pretty much for the rest of the day, USUALLY "! My neurologist and I are playing with meds & dosage. I'm exasperated by the entire process. Dr. and I are going to meet soon.-17 Gman
get "better & better every day in every way"!
@yes, I have that also. I am just fine going about my business until about 2 in the afternoon when my body just stops working. It is such an effort to walk. Like I am walking through quicksand. I take my carbidopa-levo 25/100 and it does nothing for me. I actually have to just sit on the couch until 5 p.m. when, it seems like my pills finally kick in once again. Then it happens again about 9 p.m. so I get myself in bed. I take my carbidopa every two hours. Had PD for 16 years. Just had dbs surgery, not programmed yet. Hopefully once I get the programming straight, this will go away. Bean