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A MyParkinsonsTeam Member asked a question 💭
Tampa, FL

Since I had PD now for 16 years but recently had dbs surgery, I dont know if I am up to that. Has anyone out there traveled and experienced any hardships with PD? Just wondering what to expect??? Bean

September 5, 2020
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A MyParkinsonsTeam Member

I got so carried away thinking about travelling, I realise that I didn't get round to answering your question.....
The difficulties I have are mostly due to the anxiety over remaining still on a flight for several hours, not being able to move around freely while feeling 'jittery. (aisle seat is best for me)
Also finding accommodation that has space for me to 'mouch' around during the night when I can't sleep without disturbing my husband/ travelling companion.
Dealing with the impatience of other travellers or airport staff when I take a little longer finding documents or picking up luggage etc.
Adjusting times for meds to different time zones.
Finally, finding the balance between pushing yourself to do things but not overdoing it!

September 9, 2020
A MyParkinsonsTeam Member

I travel, but do a zillion little things, just in case. #1 is I do not drive myself, alone and #2 is I do not fly alone but only with someone who knows me. I wear compression socks, and compression waist band. And I use scopolamine ear patch and so-much-water. I do stretches in my seat, and stretches all the way to restrooms and back, as often as I can. I also like to listen to classical music and if I can, I read a good (mindless) book or look at magazines.
I have spent my whole life traveling, a lot, so I am very nervous about giving-it-up. But for now, my family and close friends are good to me.

September 25, 2020
A MyParkinsonsTeam Member

I had. I took a long trip fro USA to Brazil and during the flight, night, when everybody were sleeping I had a hallucination crying loud... fortunately the lady sat by me woke me up... Now I have a trauma, thinking that it will be happening again...

September 7, 2020
A MyParkinsonsTeam Member

I live in Utah, big mountains, big red rock deserts etc, so I have spent most vactions camping; actually life long outdoors person, camper, hunter etc. Younger days with the young family, it was tents. Middle aged, it became tent trailers. Then older, a nice 32 ft tow trailer with everything in it. My late wife and I spent a lot of good times in it. Then she passed and later, Shaunee and I spent great times in it. Along comes Parkinson’s and it became simply to much work to get set up. And Shaunee was afraid of pulling it with my big Ford F250. So, we found us a well taken care of older Fleetwood motorhome. Now we stop, park, plug in and that, as they say, is that. And Shaunee, having trained as school bus driver many years ago, has no problem driving when I am not in a condition to drive.

Soon we will have a small car or Jeep to tow behind the motorhome so as to have something to see the sights, as it were.

September 6, 2020
A MyParkinsonsTeam Member

Bean:I haven't traveled since dx 6 years ago but I did read the answers people wrote you. I thought they were very open and honest.. I'd like to give my opinion. If you feel up to it GO and have a good time . You know the covid-19 precautions and you're going with your husband, who probably knows your routine. He also may know if something was wrong. So.. I would pack my meds, bring my contact numbers, write down hospitals (just for your security) and GO! Best of luck and be safe.

September 6, 2020

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