Do Most Of You In This Group Take Carbidopa Levodopa? | MyParkinsonsTeam

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Do Most Of You In This Group Take Carbidopa Levodopa?
A MyParkinsonsTeam Member asked a question 💭
posted May 14, 2021
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A MyParkinsonsTeam Member

Gbaby58, I had that experience with. Insurance not covering extra carbidopa. My daughter heard from a co-worker about PAN Foundation, an organization that will pay the extra cost of uninsured meds. They actually sent me a grant for $3,000, good from 12/2020 to 3/2022. I haven't used it because right now I'm not takinh C/L at all. Feel better without it at the moment. Go to PAN Foundation online to apply for help.

posted May 19, 2021
A MyParkinsonsTeam Member

I couldn’t read all your message.

posted May 24, 2021
A MyParkinsonsTeam Member

The doctor changed my CL to (Phone number can only be seen by the question and answer creators) and 8:00. A lot easier to remember. Have alarm set on my iPad.

posted May 23, 2021
A MyParkinsonsTeam Member

Resagilin seems to be the standard now this is the third neurologist that tells me it's known to slow down the progression.

posted May 21, 2021
A MyParkinsonsTeam Member

Problem with the side effects is that other doctors don't recognize them, and then prescribe tests to check their finding them, we need a list of all the known side effects that can be shown to gp doctors to limit extra testing.🙃

posted May 15, 2021

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