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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do Most Of You In This Group Take Carbidopa Levodopa?

Do Most Of You In This Group Take Carbidopa Levodopa?

posted May 14, 2021
A MyParkinsonsTeam Member

Gbaby58, I had that experience with. Insurance not covering extra carbidopa. My daughter heard from a co-worker about PAN Foundation, an organization that will pay the extra cost of uninsured meds. They actually sent me a grant for $3,000, good from 12/2020 to 3/2022. I haven't used it because right now I'm not takinh C/L at all. Feel better without it at the moment. Go to PAN Foundation online to apply for help.

posted May 19, 2021
A MyParkinsonsTeam Member

I couldn’t read all your message.

posted May 24, 2021
A MyParkinsonsTeam Member

The doctor changed my CL to (Phone number can only be seen by the question and answer creators) and 8:00. A lot easier to remember. Have alarm set on my iPad.

posted May 23, 2021
A MyParkinsonsTeam Member

Resagilin seems to be the standard now this is the third neurologist that tells me it's known to slow down the progression.

posted May 21, 2021
A MyParkinsonsTeam Member

Problem with the side effects is that other doctors don't recognize them, and then prescribe tests to check their finding them, we need a list of all the known side effects that can be shown to gp doctors to limit extra testing.🙃

posted May 15, 2021

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