Connect with others who understand.

Sign up Log in
Resources
About MyParkinsonsTeam
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Many People Have Had Deep Brain Stimulation On Here And Do You Think It's Worth It How Long Have You Had It.

A MyParkinsonsTeam Member asked a question 💭
Dayton, OH
September 17, 2021
View reactions
A MyParkinsonsTeam Member

I had DBS May 6, 2013. I would do it again today. Without a no doubt the best medical decision I have ever made. DBS is still doing exactly what it is supposed to be doing. Private message me if you want more information.

September 17, 2021
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, I have had DBS. Had it done in October 2019. Took me a year to get the perfect setting for me. Many of my symptoms went away but still dealing with extreme fatigue in the afternoon which I can live with and work around. I am really surprised I went for the procedure, I am so chicken about things like that, don't even like removing a splinter! And being awake during the process is not my cup of tea. But I am proud of myself for going through with it. If you have any questions about the procedure, I would be glad to answer them for you. Bean

October 7, 2021
A MyParkinsonsTeam Member

My husband had it January 2021, and we have to say it’s been a success! He can move quite well -he still takes Rytary, but can walk without tremor and many times he forgets to grab his cane when leaving the house. It’s not a cure all, but has definitely helped!

February 22, 2023
A MyParkinsonsTeam Member

I had my DBS done in September of 2022. Had both sides done at the same time. I love how much better I feel. I eliminated one of my meds and now just take carb/lebadopa. My doctor had to do the surgery before I turned 76 in October.

January 29, 2023
A MyParkinsonsTeam Member

It is worth it I got mine on my bday. 4-2-2019 and it does work with dystonia you just have to read your book when you get the kit when you get the DBS

July 20, 2023

Related content

View All

Has Anyone Had DBS (deep Brain Stimulation)? How Did It Help You? Any Side Effects?

A MyParkinsonsTeam Member asked a question 💭
Finger, TN

Has Anyone Here Had The Deep Brain Stimulation Surgery? If So, How Is It Working For You?

A MyParkinsonsTeam Member asked a question 💭
Boulder City, NV

Has Anyone Here Had Deep Brain Stimulation? Would You Recommend It As A Positive Step Forward.

A MyParkinsonsTeam Member asked a question 💭
Derby, UK

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Lock Icon Your privacy is our priority.
Already a Member? Log in