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A MyParkinsonsTeam Member asked a question 💭
Placerville, CA

Has anyone else had this problem? I’m getting really frustrated with it. Because I’m always afraid I’m going to be dropped when I’m writing a long answer
Getting dropped after I’ve done a long message is so annoying. Does anybody else have this problem? I can write a message and it waits until I’m almost completely finished with the message and ready to send it and it totally drops everything I just typed. And most of the time I do not have the energy to do it again so I have to wait until… read more

October 17, 2021 (edited)
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A MyParkinsonsTeam Member

I think I figured something out, but I could be wrong. If you go to the home page or wall of whoever you want to talk to, you can write, and it won’t disappear. You can also find the conversation there and add to it., I think. That seems to be working for me, but maybe I’ve just gotten lucky.

October 29, 2021
A MyParkinsonsTeam Member

My internet drops me fairly frequently so I lose connection. Then when I try to post, it won't. I don't usually lose the message I typed, just the ability to post it then .I'll usually cut it out and refresh the page and then I can post it.

If you know you're going to do a long post in response to someone, you might try typing it in Word and then paste it into the forum. If you worry about losing the question, then it helps to go to the individual's page and open it so you know who you are responding to and can find the question there.

October 17, 2021
A MyParkinsonsTeam Member

Well I don’t know what is going on and/or who is spying on our posts (lol) . But since I put out my question to all my friends on this site… I have not been dropped. Before that I was dropped almost every time i posted something. In fact I was halfway through a conversation yesterday, I think… & I had go to the bedroom to retrieve something so I laid my phone down & then immediately forgot about my post I had been writing. I think i was away from it for a good 5-7 minutes. When I finally picked up my phone knowing my message would be long gone. To my surprise it was still there and wasn’t frozen nor had it disappeared. It was waiting for me to come back and finish my message.
What a happy surprise….someone is watching!!! oooeeeooo…who ever fixed it, I want to send them a message…” if you fixed our problem I want to say a big THANK YOU!!! If you didn’t fix it, I’d love to have you do whatever you can. Again, if you are the phantom that fixed it there are lots of people that love you 😍!!

October 23, 2021
A MyParkinsonsTeam Member

Yes it happened to me also.

October 17, 2021
A MyParkinsonsTeam Member

That should help you tremendously. Make sure to do your research on the drug, sometimes higher dosage can cause problems too. Track how this new dosage is working for you so your Dr can adjust if needed. My person w PD just had his dosage lowered. His dyskinesia was getting worse...this disease really is a constant juggling act for dosages. NOT trying to be a downer, just sharing experience

Hugs

October 17, 2021

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