I have learned to be my own best advocate and have developed a good understanding with my med team. In the end you are in charge Do as much research as possible and document your progress. Coming from a place of an equal partner has been a long but fruitful journey. After two stressful years they are listening to me .Best of luck in finding a good neurologist you can trust.
All this time and test , I find talking to others with the same problems helps more
I really thought I answered this but maybe it didn’t go through. I was disappointed in my neurologist who is, by the way, a movement specialist. I was going to a young woman at UC Davis because I have been told they were on the cutting edge of what’s going on with Parkinson’s.She never really wanted to listen to me. She had a list of things that she went through testing me in various areas but didn’t really give me a lot of time to ask the questions I had written down before I got to my appointment. I switched after Covid to someone local in my area so I wouldn’t have to drive so far. But it just didn’t work out he’s an older guy and told me the last time I was in that he wanted to hear about my Parkinson’s symptoms. Totally omitting anything it had to do with unseen symptoms which I have many needed to talk to someone about… Specifically my doctor? He told me he only wanted to hear about my Parkinson’s symptoms and he never tested me for anything. So guess what… I back to UC Davis to the gal I wasn’t real happy with but at least she knows what she’s doing and does test me to see whether I’ve gotten better or worse. So I guess what I’m saying is even if the neurologist doesn’t have the greatest of personalities and warmth at least if they do the testing of you it is difficult to find someone that you really like in every way. You are very fortunate to find that I will cross my fingers for you I hope you find someone that works well for you and with you. This is a lonely road sometimes. Good luck on your journey and search.
My neurologists practice is too broad. Shopping for one who primarily focuses on PD.
Happy to meet you. As Thea just said, there is a wealth of information here.
Let me tell you about choosing a neurologist. There is one thing that you must know:
The neurologist that you chose must be either one who has extensive experience with Parkinson's or a movement disorder specialist. No other will do.
If you want to see about more things on Parkinson's, i invite you to have a look at my story page.
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