I just got the paperwork for my physical therapy appointment. I'm scheduled for pelvic physical therapy. I hope it works. I dont want to start another med!

I’m not sure which is worse; trouble going, or trouble holding; I have both. It’s a race to see if I can make it, and if I do, will I be successful, after several trips I can finally go to sleep.
Teresa

Sheryl, I have the same problem at times. Like you I have not found anything online (just incontinence which is the opposite!) and my neurologist is also unhelpful. In South Africa there are not many neurologists these days as most have emigrated. To my knowledge we have no movement disorder specialists as in the US. I had this trouble many years ago while still working in Switzerland and ended up having seeing a urologist who performed several urethral dilations over the years. These helped for a while, but were not a permanent solution. I actually find coffee helps as it is diuretic, but obviously one cannot drink too much and not in the afternoon as the caffeine interferes with sleep. This is not a healthy way of dealing with the problem but for me it works in the morning which is when I allow myself to have coffee.
If you find another solution, please keep me in the loop.
I do keep very hydrated by drinking plenty of water which does not help the liquid volume in the bladder of course!
Hugs,
Terry

Sheryl,

What I mention here is not just my opinion but is based on mine and others experiences with PD and more importantly some ongoing medical studies.

Our 'gut' has a major role in our PD health.

First of all, the BEST Neurologist to see is a certified MDS (Movement Disorder Specialist). They are specifically trained and educated (2+ more years of training) to help people like you and me. The other doctors that are utmost important to us is the Gastroenterologist and the Urologist (bladder issues).

1) https://medicine.yale.edu/news-article/does-par...

2) https://www.google.com/search?q=PD+and+the+Gut&...

Lastly, ALWAYS talk to your Neurologist first then go forward. If you're not getting a satisfactory answer, find another one.

Bottom line: Always ASK Questions!

Just like you're doing now. Ha!

Take Care!
Jack

OrlandoJack Yes, I have looked online, but everything I've read so far abou PD and bladder seems to talk about leakage and urinary incontinence. I will be seeing my PCP on Monday. It's taken me over 2 months to get an appt, but he told me last visit that I would soon know more than him as it's not his area of expertise. My neurologist has been most unhelpful. I need to see a PD specialist, but I was just diagnosed in July, and I'm still in the process of building a support team. I'll keep researching online as you suggested!😊