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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Grand Junction, CO

Because my wife is experiencing Neurogenic Orthostatic Hypotension (nOH) her Neurologist believes she has MSA and not PD. This is very alarming because MSA patients only live for about 5 to 7 years after diagnosis!

November 13, 2022
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A MyParkinsonsTeam Member

I have Parkinson’s and orthostatic hypotension and I have lived with it for 24 years.. Recently had DBS surgery and responded well to it.

November 15, 2022
A MyParkinsonsTeam Member

Parkinson’s can have some symptoms that people with MS typically don’t have:

Slowed movement (your doctor will call it bradykinesia)
Feet drag or shuffle
Stiff, rigid muscles
Poor posture
Loss of control over how you blink, smile, swallow, or swing your arms when you walk
Small, cramped handwriting

November 13, 2022
A MyParkinsonsTeam Member

I have MSA and the average number of years is now 7-10 after diagnosis, but the earlier diagnosis the better. However, people have lived as long as 15 years so never give up; we don’t know how long we have; that’s God’s department. Also, information has been flowing regarding the knowledge of the brain. Hope rings eternal unless one gives it up. God bless you both.

August 13, 2023
A MyParkinsonsTeam Member

I'm sorry to hear about your wife's illness. One thing to keep in mind about multiple system atrophy is that everyone is different, including when it comes to disease progression. That's why some people call it the "snowflake disease" - no two cases are exactly alike. Also, there's a lot happening right now in the area of MSA diagnosis. Here's a link to the MSA Coalition's page that delves into that. I hope you find it helpful, and I wish you and your wife all the best. https://www.multiplesystematrophy.org/about-msa....

November 15, 2022
A MyParkinsonsTeam Member

One of my first noticeable symptoms was my handwriting became much smaller and very messy. Sloppy. Check out her handwriting.
My hands tremors and I bumped into walls often. I hope this helps you.

November 13, 2022

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