Hello My Friends. Has Anyone Had Experience With A Condition Called Neuropathy? | MyParkinsonsTeam

Connect with others who understand.

sign up Log in
Resources
About MyParkinsonsTeam
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Hello My Friends. Has Anyone Had Experience With A Condition Called Neuropathy?
A MyParkinsonsTeam Member asked a question 💭

I've been experiencing what I thought were symptoms of PD. When I explained these symptoms to my neurologist, he said these don't sound like they were caused by Parkinson's. I described to the dr the rather sudden increase in disequilibrium (dizznes, sort of) the "clouded feeling" of PD, and what I'd describe as clumsiness whereupon I am sometimes knocking small things over inadvertantly and having to reach for a light switch a couple of times before I connect with it. The nuerologist thinks… read more

posted August 19, 2023
View reactions
A MyParkinsonsTeam Member

I have peripheral neuropathy which causes my hands and feet to feel numb. I get that clouded feeling when I’m fatigued, but wasn’t aware it was considered neuropathy. Sometimes a short nap will help. Exercise helps as well, and seems to keep it away longer, even though that’s usually the last thing you feel like doing when you feel that way. It’s strange how different neurologists have differing opinions on the same condition. When I asked mine about my fatigue and cloudiness his response was “I don’t know “. He changed the timing on my meds but it made no difference so I changed back. Hope your day was a good one.

posted August 19, 2023 (edited)
A MyParkinsonsTeam Member

All exercises help body & mind b ut it was suggested to try a video came that uses eye/hnd dexterity. I love apple's arcade Dr Who. I have a great memory but this keeps it very sharp (Fun game)free 1st month

posted August 30, 2023
A MyParkinsonsTeam Member

1st month free, very effective for eyes, hands memory

posted August 31, 2023
A MyParkinsonsTeam Member

In the beginning I dropped things because I underestimated how long it takes to set cup on counter .I'm slower so I have to learn new timing

posted August 29, 2023
A MyParkinsonsTeam Member

I was diagnosed with neuropathy over 15 years ago. I also have "restles leg syndrome". And now I have PD. Seems like one progressed into another. I also take 600mg x3 Gabapentin and Ropineral. Dr. added Sinimet and Amantadine for my PD. Thankfully these drugs help me to be able to function and sleep. I moved around so much I could't sleep with my husband as I would kick him and then I fell out of bed three times before I saw a Neurologist. I had a Dat-scan and it showed I had PD. I insisted it was essential tremors. Yes,I'm very stubborn and I didn't accept her diagnosis. My symptoms got worse and my husband and I saw the 2nd Dat-scan which was impossible to refute that I did have PD. I also now have dystonia which is fun when you knock over a glass of water or hit someone,ha,ha. I have to laugh at all of this in order not to sit and cry all day. I can't walk a straight line and I have to use my "blitzed out" cane to go anywhere. If I don't take my Gabapentin and Ropineral at night there is H''' to pay. This has been quite a journey and one I did't expect as no one in my family has had PD. I'm just grateful I have such a patient neurologist, the medications I need and a wonderful husband. Hopefully new medications and treatments will soon be found. Smile more and you will have better days.

posted December 27, 2023

Related content

View All
Phila
A MyParkinsonsTeam Member asked a question 💭
Theracycle
A MyParkinsonsTeam Member asked a question 💭
Initial Diagnosis
A MyParkinsonsTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in