Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Have you seen the tool developed by The Parkinson's Foundation and abbvie to track PD symptoms?

A MyParkinsonsTeam Member asked a question 💭
Burlington, KY

This tool includes questions for you to track and share info about
Frequency of your PD med
Motor fluctuations
Off periods
Troublesome dyskinesia
Activities of daily living (ADL's)

It is a short, 2 page questionnaire you can use to collect important info about your PD symptoms in order to help you share your details with your healthcare professional
I could not cut and paste the tool into this message so if you would like to view and/or use it, please go to The Parkinson's Team website. (… read more

September 25, 2023
 · 
Reactions

Answer Summary

Members responded to a post about a Parkinson's Foundation and AbbVie symptom tracking tool, with many sharing that they hadn't heard of it... Read more

Members responded to a post about a Parkinson's Foundation and AbbVie symptom tracking tool, with many sharing that they hadn't heard of it but were eager to explore it for their own care. Several members helped troubleshoot a broken link by finding and sharing a working PDF version of the symptom diary, and one member also recommended the StrivePD app paired with an Apple Watch for digital symptom tracking. A recurring theme was gratitude for shared resources and a strong community spirit of learning together to better communicate symptoms with healthcare teams.

A MyParkinsonsTeam Member

Thanks to all for sharing this information.

September 29, 2023
A MyParkinsonsTeam Member

https://www.parkinson.org/sites/default/files/d...
@A MyParkinsonsTeam Member.

Maria, I found a symptom tracker using Google and have pasted the address above. This because your link takes one to write an email as @A MyParkinsonsTeam Member
Thank you so much for all the info you have been posting, I think many folk are finding it so helpful.
Hugs and blessings,
Terry

September 28, 2023
A MyParkinsonsTeam Member

Thanks Bruce. I hope you find this tool interesting and maybe even useful. Also thanks for sharing your experience with the movement specialist. I'm looking forward to my appointment.
Maria

September 25, 2023
A MyParkinsonsTeam Member

Thanks for sharing the great idea Renee. I am an old school girl even though I spent a lot of time developing medical grade software. It must be an 'old dog' thing. My daughter will be thrilled if I add the Apple watch and related software to my holiday wish list.
Maria

October 25, 2023
A MyParkinsonsTeam Member

I use an PD app called StrivePD that, with an Apple Watch, tracks PD symptoms and allows you to create a picture past & predictive. It is a great app that can be part of keeping track of your symptoms and provides great info to share with your PD support team. You can get it on the Apple Store. Also, Apple now has a Parkinson’s tracking feature that is pretty insightful and helps to put a full picture together to use in treating your symptoms. I’ve had it for a year now and think it’s finally ready for prime time.

October 25, 2023

Related Questions

View All

How can you tell what stage the Parkinson's is progressing

A MyParkinsonsTeam Member asked a question 💭
Chesapeake, VA
August 18

The Latest in PD Treatments
8 Tips for Parkinson’s Caregivers
Why Tracking Parkinson’s Progression Matters: Use This Tool To Track Symptoms