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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has anyone had experience with a Motion Disorder Specialist? Are they any different than a Neurologist?

A MyParkinsonsTeam Member asked a question 💭
Middlesex, NJ
June 12
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Answer Summary

Members addressed whether a misdiagnosis of Parkinson's is possible and strongly agreed that seeing a Movement Disorder Specialist (MDS) is... Read more

Members addressed whether a misdiagnosis of Parkinson's is possible and strongly agreed that seeing a Movement Disorder Specialist (MDS) is far better than seeing a general neurologist, as an MDS has extra years of training focused specifically on PD and related conditions. Several members shared that their MDS appointments felt more thorough and helpful, with one noting a four-hour drive was well worth it, and another recommending the PD Generation study through the Parkinson's Foundation to help confirm a diagnosis. A recurring theme was that early diagnosis can take time since symptoms are not always consistent, but staying informed and advocating for specialized care makes a meaningful difference.

MyParkinsonsTeam

Great question! Yes, Movement Disorder Specialists (MDS) are different from general neurologists, and the difference can be significant for managing Parkinson's.

While general neurologists treat a wide range of brain and nerve conditions, a Movement Disorder Specialist has completed an additional two years of focused Show Full Answer

Great question! Yes, Movement Disorder Specialists (MDS) are different from general neurologists, and the difference can be significant for managing Parkinson's.

While general neurologists treat a wide range of brain and nerve conditions, a Movement Disorder Specialist has completed an additional two years of focused training specifically on Parkinson's and related movement conditions. This extra training means they:

- See people with Parkinson's every day, making them better at spotting subtle symptoms
- Are less likely to misdiagnose, especially in early stages
- Know the latest treatment options, including clinical trials
- Can fine-tune medications, including managing "off" time between doses
- Can build a broader care team for you, including physical, occupational, and speech therapists Research actually shows that people who see a Movement Disorder Specialist tend to have better outcomes, including improved quality of life and longer life expectancy.

A MyParkinsonsTeam member once shared that finding the right specialist made a real difference in feeling supported and having a clear treatment plan.

To find one, you can ask your current neurologist or primary care doctor for a referral, or call the Parkinson's Foundation Helpline at (Phone number can only be seen by the question and answer creators).

June 12
A MyParkinsonsTeam Member

There are Parkinsonisms that closely resemble PD. It is only after time has passed that the differences become more apparent. A Movement Disorder Specialist might be able to help you figure it out.

June 12
A MyParkinsonsTeam Member

Yes, a MDS is a neurologist that works specially with PD. A regular neurologist handles a much broader spectrum of diseases and conditions. It is best to find a reputable MDS. Mine is a four-hour drive from my home. And it is worth every mile.

June 15
A MyParkinsonsTeam Member

Use a neurologist who is a specialist in Parkinsons and movement  disorder. They are not the same as a regular neurologist. 

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June 13
A MyParkinsonsTeam Member

Yes. A Movement Disorder Specialist is a neurology specialist and knows more about PD than just a Neurologist. They have had several more years of training and you do not have to give up your Neurologist (if you like them) to see one.

June 15

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