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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Olive Branch, MS

Is it expensive? My doctor tried to give me a higher dose but it made me too ill. I was throwing up all day. Now îf my insurance would only approve ît! I can't imagine why they are balking unless it is over the cost. I believe it is a newer drug.

December 7, 2023
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A MyParkinsonsTeam Member

I have no idea why they would be charging more than most of the Carbidopa/Levodopa combination drugs. It’s not that new ( approved in 2015 ), it has a huge list of contraindications, and just as long a list of side effects. From what I’ve been able to gather about it, be very careful and follow the schedule for taking it, for weaning off it, if you should ever need to, and for being checked for the problems that can be found when taking it. If it works for you, that’s great! Just learn as much as you can about it ( which I would recommend no matter what you’re taking). Sometimes the same meds just need to be introduced to your body in a different way to work.

December 7, 2023
A MyParkinsonsTeam Member

I use it and so far have had good luck with Rytary.

December 7, 2023
A MyParkinsonsTeam Member

Rytary costs us about $300/3mo supply

December 11, 2023
A MyParkinsonsTeam Member

I take two sinemet 25/100's five times a day and two Sinemet CR 50/200's before bed.
This combination keeps most of my symptoms well controlled with minimal on/off cycles issue's. Stress is an unknown that can throw a monkey wrench in my schedule, otherwise I'm good with the current medication levels.

December 8, 2023
A MyParkinsonsTeam Member

I tried 1 pill and I cramped all night long. If I were going to take it the cost was $300.

December 7, 2023

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