I Would Love Your Help. What Would You Say, Do, Think, And Feel If Your Diagnosis And Prognosis Changed In A Flash? | MyParkinsonsTeam

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I Would Love Your Help. What Would You Say, Do, Think, And Feel If Your Diagnosis And Prognosis Changed In A Flash?
A MyParkinsonsTeam Member asked a question 💭

I'm shocked and thrilled to learn that this can happen and did happen just yesterday and I really have no idea what to do now after spending most of the past 9 yrs accepting and adapting to PD.
Maria

posted December 13, 2023
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A MyParkinsonsTeam Member

If all my meds could be removed and be free, again. It would feel like a dream, and I can't tolerate a dream sequence. So, it was a nice dream for a few. Just a few. Thank you.

posted December 15, 2023
A MyParkinsonsTeam Member

Dear Lukas I think everyone probably has different symptoms and it is very difficult to predict what will happen next. I regard it as just part of growing older and am grateful to be able to enjoy something special every day.

posted December 13, 2023
A MyParkinsonsTeam Member

I would be thrilled and grateful and be more compassionate for those who have it
I guess I was thinking that something miraculous had occurred not a trade off for something else

posted December 13, 2023
A MyParkinsonsTeam Member

Maria, thank you for your post. I am going on my second full year of undiagnosed neurological condition. Whatever I have is close to PD but my neurologist believes that I don’t meet the criteria mainly because of the combination of resting tremor on the left side and intention tremor on the right also I can still smell and have no cognitive impairments . They discount the brain fog, pain in my right leg and shoulder at night and digestive issues.Functional neurological conditions mean they don’t know. Very similar to its all in your head. I have found many of the PD recomendations on this website ( and you helpful). Exercise, diet, music,.keep up the great work and god bless you.

posted December 13, 2023
A MyParkinsonsTeam Member

I'm so happy you are weighing in Susan. I was going to reach out to you on your page when my thoughts cleared a bit. I'm a terrible skeptic and patient having been on the providing side of treatment rather than the receiving end for so long so I was and continue to be a tough saie. But, the reasonable new diagnosis is FND, functional neurological disorder. I'll share more if you like, after further research, a bit of rest and time to pull my thoughts together.
Maria

posted December 13, 2023

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