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A MyParkinsonsTeam Member asked a question 💭
Naples, FL

I am in agony with distonia in my left foot and freezing of my mouth musles since switching from Sinemet 25 mg 5 times a day to Rytary 48 ER 3 times a day.

I was on Rytary 48 ER 3 times a day before swtching to Sinemet 25 mg 5 times a day due to cost but was OK except for moderate cramping in left foot.
Sinemet stopped working now Rytary is making me sick
What can i do?

December 26, 2023
 · 
Be the first to react
A MyParkinsonsTeam Member

Thankyou! Dr just. added Ropinerole low dose to help with toes cramping! Im optomistic with Rytary 48 er 3 times a day...we' see

December 27, 2023
A MyParkinsonsTeam Member

Finding the exact dosage is a constant battle. I adjust mine, not my Neurologist. He's not with me, bur a half hour every now and then.
I'm with me all the time. I have a basic dosage level and adjust up or down by a pill as needed, keep a record, and show it to my Neurologist at my appointment. He then adjust my prescription to make sure I have what I need when I need it.
I tend to avoid taking extra if at all possible, but have taken two to four extra pills on a stressful day. I have always tolerated the medication well.
This works for me, you gotta do you.

December 27, 2023
A MyParkinsonsTeam Member

Yes but fear it due to side effects!

December 27, 2023
A MyParkinsonsTeam Member

Have you considered Doudopa pump?

December 27, 2023
A MyParkinsonsTeam Member

Thankyou for your response. I just want to regain consistancy and find the right dosage.

December 26, 2023

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