helping at all. Thank you
Thank you for replying. My wife has become my caregiver.
Thank You all for the replies
I am 62 and have have had PD since I was 48. When I first saw my doctor he put me on Azilect It is supposed to slow the progression. He also gave me Ropinirole. He told me that it acted like a" Skeleton Key" to trick my brain into thinking it was getting more dopamine. The 2 helped but when he added the sinemet I really improved. When Rytary came on the market I switched to it and stopped the sinemet. I have been on the same meds & dosages all this time. My doctor told me that he liked to give low doses and meds that worked differently so I would not get the side effects that a higher dosage might bring on. I am still working full time & unless I am having a bad day most people would not know I have PD.
Frank347,
How nice your wife has become your caregiver. Hope you had a great day today. Take care, BFN!😊🤗👍
My husband got off of Repinerole early on and we elected not to ever get on Selegeline. Everyone is different. He was diagnosed with early onset 11 years ago. 9 of those years he was on timed release Rytary, very slowly going up in dosage. This worked very well for him. Then when he reached the top layer of Rytary, it stopped working as well. So he recently went back to regular sinemet carbadopa/levadopa at 6 pills per day spaced out. 25-100 mg each pill. It has been an adjustment and is not working perfectly, but is not horrible either. He has become more constipated though. He says that sometimes the pill just "does not kick in at all" -- this seems random and is horrible for him, but he distracts himself a lot playing computer games, including learning games and also books on tape. We are trying to lower the protein he has at each meal and I am trying to get him to exercise more. Good luck and hope your neurologist is open to change. You have to give it a lot of time to work, though. Like a few months. And you have to get off the old and onto the new a certain way -- don't just do it overnight. Your neurologist will help you know how to do this properly. Do you have caregiver that can help you?