Has Your Parkinson’s Made You Have Zero Filter?😄 | MyParkinsonsTeam

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Has Your Parkinson’s Made You Have Zero Filter?😄
A MyParkinsonsTeam Member asked a question 💭
posted March 28
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A MyParkinsonsTeam Member

I hope I conveyed that my filters are not insults toward people in general. But I have learned to speak up for myself, especially regarding medical personnel or those pesky solicitors. I had a horrible experience when I was in the hospital with COVID-19, where three nurse aides came into my room, threatening me to stop using my call button because I was putting their lives in jeopardy. I was very sick, and to have three 'kids' come in to threaten me because I was asking for help. They would not let me talk with the head nurse since she felt the same way. During Covid, patients were isolated. When the medical personnel came in, they were covered from head to toe with protective garments. I was isolated from family except through phone calls.
That night, I found my voice to speak up about my right to receive medical help without being intimidated. The next day, the physical therapist came in to help me walk, and I told him what had happened. He was quick to contact the administration nurse who came in asking questions. She wondered what they looked like...well, they looked a lot like you. With all that protected gear, everyone looked the same. I did recognize one who had been my aide that day by her voice. I was able to tell the approximate time, they pulled up the camera for that time and found two were not even on duty. So, yes I advocate for myself now, no filters.

posted March 30
A MyParkinsonsTeam Member

Phil 10 Don’t be too sure 😎
🌈TheaD

posted March 29
A MyParkinsonsTeam Member

I've never been assertive, but I find myself with those filter problems. I thought it was just a privilege of growing old. I may have just found my voice, and yes, Phil10, now they know what I'm thinking. Is it Parkinson's or old age privilege? I do have a filter when it relates to insulting people, i.e. the teller at the bank with naturally red hair wearing a bright pink blouse. I don't just gasp and say that pink blouse does not go with red hair. But when it comes to going to the ER and having some insensitive nurse say. You! Again? Yes, it's me again, Margaret.

posted March 29
A MyParkinsonsTeam Member

Kevdog11, I will be sure to look for your question. Your time is valuable so I do understand. Unfortunately, I have visited the ER 3 times last week. Two times were probably related to our oldest and most time consuming friend Parkie. The 3rd time was one of my other long time friend congestive heart failure. My blood pressure was 230/100. I am writing this at 3:43am on Good Friday. Easter is not too far away. Pray that you have a Blessed Easter weekend. And we will always Remember what God and Jesus did for all of us. Amen. JudyTx 🌹

posted March 29
A MyParkinsonsTeam Member

Yes, one of my least bothersome symptoms. Life is too short for the BS. If I want to do something, then I’ll do it now, not wait until tomorrow when I may be unable to. And the same with the way I talk to people. If I think something I say it. If I want something, I ask for it. I encourage everyone around me to do the same; my time is a very precious commodity right now, and I don’t have any spare to waste on the usual daily BS.

posted March 28

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