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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

If sleeping is such a problem why don't they really give me something to knock me the heck out? They say they worry about failing, well

A MyParkinsonsTeam Member asked a question 💭
Canton, OH

Without sleeping I believe is more dangerous. So over it. Anyone?

May 28, 2024
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Answer Summary

Members dealing with Parkinson's-related sleep struggles came together to share what has and hasn't worked for them when asking why doctors... Read more

Members dealing with Parkinson's-related sleep struggles came together to share what has and hasn't worked for them when asking why doctors won't prescribe stronger sleep aids. Several members shared specific remedies that have helped, including Mirtazapine, Trazodone, Clonazepam, Melatonin, Magnesium, THC gummies, and Pregabalin, while others warned about risks like sleepwalking, next-day grogginess, and falls. A recurring theme was the real and exhausting toll of not sleeping with PD, including REM Behavior Disorder, and the importance of finding a personalized solution with support from your care team.

A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member Thank you for the uplift ! 😄

May 29, 2024
A MyParkinsonsTeam Member

Tell the Doc that the only thing you're worried about is falling; pause and add, asleep. Or The only falling your concerned with is asleep.

June 1, 2024
A MyParkinsonsTeam Member

One problem with pharmaceuticals for sleep is they can leave a feeling hungover. They can cause an inability to remember and/ or you may get, up take a fall and be unable to recall where your injuries came from; a host of other things can occur and if there’s no one there to help you could be in trouble. There are ways to train yourself to gradually sleep more; it takes dedication but it’s been done. That having been said REM sleep behavior disorder is sometimes more complicated. There are sleep disorder specialists I understand but have no idea where to find them; under the bed perhaps? 🤔

May 28, 2024
A MyParkinsonsTeam Member

Do something to get you tired for an hour then get some THC and really get tired. I avg 5 to 6 hrs of continuous deep sleep every nite. I FEEL GREAT IN THE MORNING. Its alot more natural than those pills the doctors give you.

May 28, 2024
A MyParkinsonsTeam Member

I still think a good ol cast iron skillet would do the job quickly. No violence intended.

May 31, 2024

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