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I have had pain from the beginning and never 😪 felt i was taken seriously. They say they worry about falls. How about the fact that many may never move again due to the 😢 pain

August 12, 2025
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Answer Summary

Members connected deeply over the frustration of chronic pain with Parkinson's disease feeling dismissed or unrecognized by medical providers,... Read more

Members connected deeply over the frustration of chronic pain with Parkinson's disease feeling dismissed or unrecognized by medical providers, with many sharing that they often feel treated like drug seekers rather than people with a serious illness. Several members described daily struggles including whole-body aches, painful tremors, shoulder injuries, spine pain, and clenched toes, with some finding small relief through exercise, walking, massage, and black seed oil. A recurring theme was the emotional weight of losing independence, and the powerful comfort found in knowing others truly understand what living with PD pain feels like.

A MyParkinsonsTeam Member

Yes, the pain is mostly on my left side, just pushing a cart helps with balance, but my left arm starts throbbing with pain. Since I broke my right collarbone it’s been really hard to putt my bra and shirt šŸ‘š on. I bought bigger tops and used front closing bras for I could be independent and dress myself. I had gotten up to 2 miles walking trying to work on 3 miles, but the pain has been to horrific! I was walking without my walker or cane inside the clubs indoor track. I’m going to try again in a couple days! Exercise is the only option to prevent the PD from getting worse, praying šŸ™ for God’s intervention for blessings of healing and strength to move forward to a better quality of life!

August 13, 2025
A MyParkinsonsTeam Member

I understand - my affected side gives me chronic, constant pain. I see a pain specialist along with my PD team at the Cleveland Clinic. The pain definitely compounds the depression and hurts the motivation to be active.

August 13, 2025
A MyParkinsonsTeam Member

I have the chronic pain too. Movement Helps a tiny bit but mostly adds to it. I had a shoulder surgery almost a year ago it didn't work out now. I now need a replacement. It's my dominant hand and so using cane or walker doesn't work for me. I haven't been in a store for very long in over 4 years. It hurts to much to walk or stand for very long. PD just sucks and it comes with so many more issues than just the shaking or tremors. Neuropathy and balance go hand in hand for me also.
Today I don't feel too bad try to have a good day everyone šŸ¤—šŸ¤—šŸ¤— and prayers šŸ™

August 15, 2025
A MyParkinsonsTeam Member

I’ve not officially been diagnosed with Parkinson’s couple years ago. I did have a DAT test, which apparently was negative. However, I have many of the same symptoms of Parkinson’s so I can relate to you. I think the thing that is frustrating me most right now is my vision goes from blurry to Having floaters and I have trouble reading. This morning early when I got up, I see things on the floor that aren’t there like my cat and I’m so afraid I’m gonna fall over it. I have had several falls the last one in January. I fractured my left elbow, which is required two surgeries. I can’t write because my writing is illegible most of the time it’s small and just really illegible. I’m going to call a neurologist today that I haven’t seen yet I have an appointment in a couple months, but I’m gonna see if I can move it up since I think I finally accepted the fact that I have PD thank you for listening. I hope your pain gets better. Hugs.

August 13, 2025
A MyParkinsonsTeam Member

Thank @A MyParkinsonsTeam Member&4& such wisdom. I have nursed so many suffering people but you show great insight. You open my eyes and ears.

August 17, 2025

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