Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Canton, OH
July 7, 2024
 · 
Reactions
A MyParkinsonsTeam Member

Right...I get this in my left foot, particularly when texting on my phone (Google "Task-related dystonia"; I know, it's weird how screwed up our bodies can become).

In my case, it's a contraction of my upper thigh and calf that causes me to raise my left leg exactly like a dog would raise it's injured hind leg; "carrying" it with its paw barely on the floor. If I persist in the task or try to walk normally, it will cause my foot to cramp and toes to curl under and is hellish painful.

I have found only one thing that helps. First, take a break from the task (kind of difficult when I want to let you guys know about this problem, but hey).
Then (holding on to something to keep my balance, I kick out my left foot...like I'm dancing to Sinatra's "New York", or doing a Lineker-style toe-poke poaching shot.

If I do this a few times, the sensation passes. The looser I can make my leg the better...and if the rest of my muscles are feeling strong enough to balance, I may even introduce the other leg and go all out as if I'm skip-bopping to the Police's "Every Little Thing She Does Is Magic" (picture related).

https://getyarn.io/yarn-clip/4cbe0a81-cb2b-4c21...

https://getyarn.io/yarn-clip/4cbe0a81-cb2b-4c21-b850-541bc3ec1814
July 8, 2024 (edited)
A MyParkinsonsTeam Member

Stretching helps. I mean a LOT of stretching.

July 7, 2024
A MyParkinsonsTeam Member

Wow. I have had "bad feet" since childhood and dystonia off and on since my diagnosis in 2019. My toes are misshapen on both feet but with the right shoe it's manageable. Hang in there guy's.

July 10, 2024
A MyParkinsonsTeam Member

I can’t say I envy you. 2 of my sisters have had similar surgeries; one was already retired, the other, a nurse in a huge hospital, had no choice but to retire. You convince me that I’m quite fortunate; all my toes are dislocated from spasms but I have little pain and very good shoes. I wish you well .

July 9, 2024
A MyParkinsonsTeam Member

I typed this then watched a documentary on Nickelback...to find their drummer has "task specific focussed dystonia". Wow. Compared to him I lost NOTHING.

July 8, 2024

Related Questions

View All
A MyParkinsonsTeam Member asked a question 💭
Omaha, NE

A MyParkinsonsTeam Member asked a question 💭
Mesa, AZ

A MyParkinsonsTeam Member asked a question 💭
Stoke-on-Trent, UK