Thanks for the answer Teresa. It sounds like a particularly nasty disease! I consider anything to do with the autonomous nervous system as extreme dangerous.
Is the treatment effective, in your opinion? Are you able to control the deep bone pain? You have my empathy and are in my thoughts and prayers.

The 5 days I was already in the hospital for something else and because I was under a doctor’s care 24/7 so why not? But 5 days on what was called L-Dopa was called “no more”. The baby dose was nearly 20 years later and the drug was Sinemet; in my mind a different drug. I gave up after one night of vomiting. As it is Sinemet wouldn’t have worked for long because I have MSA-C.

Teresa, being nauseas once, nevermind any vomiting, would be enough to convince me it wasn't for me!

Thanks Lani. I have several meds they give too help with pain, anxiety, breathing nausea and diarrhea. They’re thinking some of my N/V may be liver related but I don’t believe in treating it at this point. They take good care of me here.
Teresa

Lani, it’s MSA-C, Multiple System Atrophy, the cerebral type. It falls under atypical Parkinsonism, sometimes called Parkinson’s plus. It is sort of a first cousin to Parkinson Disease, but progresses more quickly and is fatal usually in an average of 7-10 years from the time of diagnosis. There is the cerebral type which is what I have, and the parkinsonian type, each one diagnosed based on obvious symptoms at time of diagnosis. So I really know more about the cerebral type, to the degree that researchers know. So my most difficult symptoms have to do with the deep bone pain and dysautonomia which for me include respiratory failure both chronic and acute, heart arrhythmias, heart failure, digestive issues and any other automatically working organs in the body which work without you thinking about it. It’s very rare and difficult to diagnose.