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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
December 6, 2024
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Answer Summary

Members connected warmly over the post about olfactory hallucinations, sharing that this experience is more common than many realized, with... Read more

Members connected warmly over the post about olfactory hallucinations, sharing that this experience is more common than many realized, with smells ranging from pleasant roses and aftershave to unsettling metallic or drains-like odors. Several members offered reassurance and even humor, with one sharing the helpful term 'phantosmia' for smelling things that aren't there, and others noting strategies like reaching out to characters in a hallucination to make it stop. A recurring theme was finding comfort in knowing others share these experiences, and the thread grew into a lively community exchange about temperature sensitivity, sleep, and living with Parkinson's day to day.

A MyParkinsonsTeam Member

BTW, the technical name for this is "phantosmia"; smelling smells that aren't there. One of those cases where the word sounds far more magical than the reality it describes...

June 19, 2025
A MyParkinsonsTeam Member

I have too I didn't realize what it could be it's something I've smelled before but just can't remember what it is

December 6, 2024
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, Fans usually make me sneeze. I thank God for central heat and air conditioning!

June 27, 2025
A MyParkinsonsTeam Member

I switch from no sense of smell at all to a generally unpleasant "drains" smell that follows me around. I tell all my friends not to be shy and to tell me if I or my house stink. Apart from jokes about the "old people smell", I've had no "yes you do" answers yet, so either I have polite friends (yeah right...they're MY friends, so chosen largely for their ability to call a spade a spade, or occasionally a bloody shovel) or I remain (relatively) fragrant.

As to aftershave I miss "Joop!", the original. I think only part of that is down to me too; they've changed the formula I think, and it's more harsh. It used to have a lovely warm vanilla smell, whereas now I can smell more of the alcohols in it.

June 19, 2025 (edited)
A MyParkinsonsTeam Member

Sending a hug though that made me laugh. I'm sure it's not funny for you when it happens.

December 10, 2024

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